3-year-old Keerthan will die without a bone marrow transplant | Milaap

3-year-old Keerthan will die without a bone marrow transplant

“He can’t sit or walk straight like all of us. His spine is slowly bending. He can’t keep his hands straight, and even changing his clothes is extremely painful. Every time I lift his hand slightly to remove his t-shirt, he screams because of the unbearable pain. Every single minute is a struggle for my baby. He’s 3, but the only word he says is amma. Sometimes when I try talking to him, he stares at me blankly. As he gets older, this is only going to get worse. He won’t survive for long without treatment, and he needs it before he turns 4 in September.” - Mangalagowri, Keerthan's mother



When Mangalagowri held little Keerthan in her arms for the first time, she thanked her stars for blessing her with a healthy baby. But 3-year-old Keerthan isn’t like other children his age. The rare, severe disease he’s suffering from has not only stunted his physical and mental growth but is also making his condition worse with time. If Keerthan doesn’t get the life-saving bone marrow transplant before he turns 4, he won’t survive this disease.

Keerthan’s disease is so rare and complicated that many hospitals turned them away

Keerthan has Mucopolysaccharidosis, a condition which distorts the body, stunts physical growth and development, limits joint movement and even affects intellectual development. This is extremely rare and dangerous, shortening the lifespan of the child considerably. The news of his diagnosis came as a complete shock to Mangalagowri and Nanjappa, who all along thought their child was ‘normal’.



“We didn’t notice anything different with him. For almost two years, he was like every other baby. He was active, cheerful and responded to everything we said. But, one day, he became very sick. When we took him to the doctor, we were told that his forehead was unusually swollen, and his physical development was abnormal. We then took him to many hospitals. Most of them had never come across a condition like this and some told us there was nothing they could do. We had almost given up until we came to Bangalore. Now there's hope, but we have no money.”

His father can’t afford to save him on a mechanic’s income, but Keerthan is running out of time

Keerthan turns 4 in September. Instead of preparing for a celebration, his parents are struggling to find a way to save their only child. They have spent nearly 8 lakhs on his treatment so far by taking loans, but now they see no way out of this misery. Keerthan needs 40 lakhs to have the transplant that will save his life. Nanjappa has a small vehicle repair shop in their hometown Kunigal, and his meagre income isn’t enough to get Keerthan treated.



I’ve heard stories of children being treated from this condition with a bone marrow transplant. I hear that they’re doing well, and it gives me hope. This is his only chance to survive, but the treatment is beyond what we will ever be able to afford. We’re running out of time to arrange for the money now. He cries so much and sometimes there’s nothing I can do to comfort him. He can’t even talk to express himself. His pain will only end with treatment.”

How You Can Help

Keerthan just has a few weeks to get a bone marrow transplant that will save his life. His rare, severe disease is only making him weaker by the day, and there’s nothing his parents can do anymore to help him. After spending lakhs on his treatment so far, they’re struggling to find a way to afford 40 lakhs. Keerthan will only survive with a bone marrow transplant and he desperately needs your help.

Your support will save Keerthan’s life.

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25th April 2020
Dear Supporters,

As mentioned in the previous update, Keerthan is fine and doing well now. We have even transferred some of the pending amount to another campaign. Now we are transferring the rest of the amount to Komadhi's campaign.

17 year old Komadhi  has been diagnosed with Severe Aplastic Anemia. Only available treatment available for her is a Bone Marrow Transplant. The campaign we started on the platform has not performed.

https://milaap.org/fundraisers/support-komadhi-1

With the consent of Keerthan's family, we are transferring the rest of the amount to Komadhi's campaign. All donors of this campaign will receive periodic updates on the status of  Komadhi's treatment via emails and messages.

Thanks for your continued support and engagement.

Regards,
Team Milaap
Dear Supporters,

As mentioned in the previous update, Keerthan is fine and doing well now. We have even transferred some of the pending amount to another campaign. Now we are transferring the rest of the amount to Komadhi's campaign.

17 year old Komadhi  has been diagnosed with Severe Aplastic Anemia. Only available treatment available for her is a Bone Marrow Transplant. The campaign we started on the platform has not performed.

https://milaap.org/fundraisers/support-komadhi-1

With the consent of Keerthan's family, we are transferring the rest of the amount to Komadhi's campaign. All donors of this campaign will receive periodic updates on the status of  Komadhi's treatment via emails and messages.

Thanks for your continued support and engagement.

Regards,
Team Milaap
23rd March 2020
Dear donors,

Keerthan is fine now. His treatment is completed and he is doing regular follow ups. We will keep you all updated on Keerthan's progress. Once again thank you all for the prayers and support.

After settlement of bills for Keerthan's treatment, we have a balance of Rs. 8,08,144.

With the consent of the family, the funds available will be used towards the treatment of other patients with urgent needs.

Harish, aged 6 years has been diagnosed with Neuroblastoma. Harish has to undergo a surgery and family is running out of funds. A sum of Rs 60000 will be transferred towards the same from this campaign for his treatment. Here's the link to their campaign:
https://milaap.org/fundraisers/support-harish-38

All donors of this campaign will receive periodic updates on the status of  Harish's treatment via emails and messages.

Thanks for your continued support and engagement.

Regards,
Team Milaap

Dear donors,

Keerthan is fine now. His treatment is completed and he is doing regular follow ups. We will keep you all updated on Keerthan's progress. Once again thank you all for the prayers and support.

After settlement of bills for Keerthan's treatment, we have a balance of Rs. 8,08,144.

With the consent of the family, the funds available will be used towards the treatment of other patients with urgent needs.

Harish, aged 6 years has been diagnosed with Neuroblastoma. Harish has to undergo a surgery and family is running out of funds. A sum of Rs 60000 will be transferred towards the same from this campaign for his treatment. Here's the link to their campaign:
https://milaap.org/fundraisers/support-harish-38

All donors of this campaign will receive periodic updates on the status of  Harish's treatment via emails and messages.

Thanks for your continued support and engagement.

Regards,
Team Milaap

23rd October 2019
Dear Supporters,

As we mentioned in the previous update, Keerthan is doing good and he is returning to normal life. Thanks to all of you for the wonderful support that you have showered.

From the amount raised we are transferring a small amount of $250 to patient Kumudha. Here is the campaign link for the same: https://milaap.org/fundraisers/support-komadhi

Thank you all.

Regards,
Sneha
Dear Supporters,

As we mentioned in the previous update, Keerthan is doing good and he is returning to normal life. Thanks to all of you for the wonderful support that you have showered.

From the amount raised we are transferring a small amount of $250 to patient Kumudha. Here is the campaign link for the same: https://milaap.org/fundraisers/support-komadhi

Thank you all.

Regards,
Sneha
Rs.4,532,296 raised

Goal: Rs.4,050,000

Beneficiary: Keerthan N info_outline

Supporters (2576)

A
Anonymous donated Rs.500
A
Anonymous donated Rs.500
Pankaj
Pankaj donated Rs.1,000

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GK
GAURAV KUMAR GUPTA donated Rs.2,500
PA
PARTHIBAN A donated Rs.110
A
Anonymous donated Rs.5,000