You Would Never Guess From His Face That He Has A Deadly Disease

Anyone who meets Hemanth would find it hard to say goodbye. He is a happy baby who always smiles and lights up the room. It is hard to feel anything negative around him. I think God gave him a gift, the power to make others happy. He's been using it on all of us since the day he was born. That smile, which makes everyone else's pain fade away, somehow does not make his pain go away. My baby boy was born with a terrible disease called HLH (Hemophagocytic Lymphohistiocytosis). His immune system is very weak, and even a common cold can take him away from me.


When I got pregnant with Hemant, I knew exactly what he would look like, be like. Our first child, a daughter, was also the same. There's never been a day in her life that she was not smiling, except for the final moments of her life. She was also born with this disease, and we lost her to it in just 6 months. We then had a baby boy. Satwik is 3 now, and he could not contain his excitement to play with a little sibling. Since Satwik was healthy, I never had a reason to think Hemanth would be sick. In November, fate gave us the worst blow.

Hemanth was born on our wedding anniversary. We could not have been happier. In November, he started falling sick very often. It did not seem serious at first, but when the fever persisted, I had a very familiar sense of dread creep over me. Ramanju and I took him to the doctor hoping we were wrong. Hemanth was diagnosed with an immunodeficiency disorder that makes too many activated immune cells. This makes it difficult for his body to protect him from any infections that threaten him. 


It took us years to find the strength to move on from the loss of our daughter. We thought, she came back to us in the form of Satwik or Hemanth. We see her in their smiles. Now, with Hemanth's body giving up on him, I feel like I'm losing my child all over again.



People who look at Hemanth would never guess that he is sick. In fact, even at the hospital, every week when he is being poked and prodded by needles, my son does not cry. The doctors and nurses are surprised as they have never seen anyone this strong, leave alone a baby.


This is why it is hard to accept. There are no visible symptoms. He is the picture of health and happiness, but from within, his body is failing. His liver and spleen are enlarged, and with every passing moment, he is slipping away from us.

Hemanth needs a bone marrow transplant to live. My husband, Ramanju is a vegetable seller, and I Hemvathi occasionally work as a tailor. We felt rich with the happiness we have had in the family.



“Now, when Hemanth's only chance to surviving is a bone marrow transplant that we cannot afford by far, we have no one to help us. Hemanth is still playful and happy, so our relatives ask us why we need help because he looks fine to them. We tried explaining that everything that’s happening to him is on the inside. His body will give up if he doesn’t get the transplant in time, but no one understands it.”


The treatment will cost us Rs. 36 lakhs and if we cannot afford it, we have to stop the treatment. It is as good as giving up on our son. I cannot do that. My son does not deserve to die because of money. Please help us save him.

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Hemanth has been living with a life-threatening immunodeficiency disorder for months now. He is highly susceptible to infections. The only thing that can save him is a bone marrow transplant. Despite the pain and suffering, baby Hemanth hasn’t given up. He continues to spread joy and happiness wherever he goes. However, his parents' meagre income is not enough to cover the 36 lakhs needed for his treatment, and they're now struggling to save him.

Your support can save baby Hemanth's life. 
Estimation letter
Estimation letter
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9th May 2018
Dear Supporters,

Here is an update on Hemanth's health.

The baby has undergone 6 cycles of chemotherapy. Now, he has to visit the hospital once in 15 days for the routine check ups.

Next follow up with the doctor is on 15th May, which will decide the future course of action. The family has undergone tests and most probably the donor for the bone marrow transplant would be someone from the family itself.

The baby finds it difficult to move and get up on his own and is constantly crying. There are side effects due to the chemo like weakness and lose motions.

The family still requires funds to proceed for further treatment. Request you to please share this campaign as much as possible and help the family.

Thank you so much for the love and support.

Ask the campaign organizer

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