Help Sushmita For Urgent Kidney Transplant | Milaap

Help Sushmita For Urgent Kidney Transplant

I am Kundan Pokhrel, husband of Sushmita Pokhrel. We live in Kalimpong District of West Bengal (India). My wife Sushmita is struggling for life with a Chronic Kidney disease, stage V and currently undergoing Dialysis in Siliguri. The doctors have suggested that the only option for us now is to undergo Kidney transplant, but this is not possible for us because of our financial condition.

How it all started?

Sushmita was a healthy pregnant woman till she was admitted in Kalimpong Government Hospital on 26 March 2015. A cesarean section (CS) was conducted on 26 March 2015 itself and a daughter was born with weight at birth 2.8 kg. But after CS was conducted, the patient started having continuous vomiting and diarrhea, no urine from third day of delivery, and face and leg were swollen. But such complaints were considered normal for post-delivery patient and were ignored and she was discharged to home on 3 April 2015. On 12th day after CS, she was referred to Siliguri with a suspect of sepsis.

From 6 April 2015 to 17 April 2015 and from 23 April 2015 to 9 May 2015, the patient was admitted in Anandalok Hospital, Siliguri, including treatment in ICU of the hospital for several days. When the patient was bought to Siliguri on 6 April, the doctor diagnosed that she was suffering from both kidney failure, with a blood creatinine level of 15.5 mg/dl (normal level 0.51 – 0.95 mg/dl). On 7th April, it was revealed that the patient is infected with Hepatitis B.  On 10th April, the patient was further diagnosed with cardiomyopathy with heart LVEF at 46% (Normal range 55 to 70%).  

On 2nd May 2015, kidney biopsy was done, but the patient suffered from Cardio respiratory arrest and had to be resuscitated and intubated on the night itself. On 3rd May 2015, Echocardiography revealed LVEF of 25%, a state of heart failure. The patient cardio function gradually improved, with LVEF of 50% on 16 May 2015. Renal Biopsy, however, suggested a case of Cortical Necrosis, a rare kidney disorder and the doctor suggested that restoring kidney function is no more possible for the patient.


The recovery in 2016/17

Despite suggestion of doctor, it was not possible for us to immediately go for kidney transplant because of financial condition. We had drained all our financial resources and also borrowed for the initial treatment above that cost us around INR 8 lakh, as she had to be treated in private hospital in Siliguri, in ICU for several days and under close supervision of doctors so as to save her life.

The expected cost of monthly medicines and minimum pathology test prescribed for the patient was more than Rs. 19,000 per month. Apart from meeting this through various means, we have been tried our best to manage additional funds, through friends and relatives, but the condition of Sushmita has deteriorated rapidly in last four month and we have already used our savings for dialysis and treatment. In addition, we live in Kalimpong, a small hill town with very limited medical facilities in government hospital. So, any complication means that we need to take Sushmita to Siliguri for treatment in expensive private hospital.

Now we are left with no fund for her kidney transplant and somehow managing her ongoing dialysis and medication costs.

The cost of transplant

We are advised that the cost for kidney transplant will be around INR 1,400,000 to INR 1,700,000. This includes cost for pre-transplant screening, donor matching, surgery, post-surgical care and the first few months medicine. Till the fund is managed for treatment, we also need to ensure that patient receives continuous dialysis and other medication.

Sushmita is a fighter….we want to see her living for us, for our little kid 

If my wife is alive today, it is because of her fighting spirit. She has gone through the worse, but still managed to comeback. We thought we are now losing her when she was put into ventilator on 2nd May 2015. But she defied all odds, responded to medications and was shifted back to ICU in 18 hours. She had started living a normal routine, always had a positive outlook towards life and even won second prize in dance competition in local event in January 2018. Her undying spirit is what keeps us hopeful. She wants to live for our little kid, now 3 years old.


But now we need you to help her live. So, please please please support Sushmita for this transplant and help her get a new life. Please contribute online or share my fundraiser on Facebook and Whatsapp by clicking on the links below. Your wishes and support mean everything to us.
Doctor Referral for kidney transplant- 1 October 2018
Doctor Referral for kidney transplant- 1 October 2018
Kidney Biopsy Report
Kidney Biopsy Report
Doctor Medical Note- May 2015
Doctor Medical Note- May 2015
Doctor Medical Note- September 2018
Doctor Medical Note- September 2018
Ask for an update
8th September 2019
Hi Everyone,
It has been almost 10 months since we last updated on status of Sushmita.

Sushmita is currently into dialysis twice a week. That is the only option we have till kidney replacement. But this does not seem to be possible unless there is a family donor.

In last 10 months after last update, she had to be hospitalized once, though there were frequent visit to doctor for checkup and addressing complexity, apart for dialysis visit.

The treatment so far is being funded with the funds you provided. While we have tried to keep invoice for charges paid to hospital, the majority of the expense is for travel, rental and food expenses and maintaining invoices for those is impractical. As you know, there is no dialysis facility in our town Kalimpong, thus requiring her to live and travel out of home. You also know that I had to leave  job for treatment of Sushmita and this led to further financial pressure. We have tried our best to keep expense at minimum.

Total expense incurred in last 10 months is around Rs.157,000 per below.
Rent expense in Siliguri                       Rs.42,000
Travel (Inc. ambulances) and Food   Rs.45,000
Medical Bills                                         Rs.70,000
Total approximate                              Rs. 157,000

Thanks a lot for your support and best wishes. Sushmita is with us today due to your blessings.

Thank you,
Kundan
Hi Everyone,
It has been almost 10 months since we last updated on status of Sushmita.

Sushmita is currently into dialysis twice a week. That is the only option we have till kidney replacement. But this does not seem to be possible unless there is a family donor.

In last 10 months after last update, she had to be hospitalized once, though there were frequent visit to doctor for checkup and addressing complexity, apart for dialysis visit.

The treatment so far is being funded with the funds you provided. While we have tried to keep invoice for charges paid to hospital, the majority of the expense is for travel, rental and food expenses and maintaining invoices for those is impractical. As you know, there is no dialysis facility in our town Kalimpong, thus requiring her to live and travel out of home. You also know that I had to leave  job for treatment of Sushmita and this led to further financial pressure. We have tried our best to keep expense at minimum.

Total expense incurred in last 10 months is around Rs.157,000 per below.
Rent expense in Siliguri                       Rs.42,000
Travel (Inc. ambulances) and Food   Rs.45,000
Medical Bills                                         Rs.70,000
Total approximate                              Rs. 157,000

Thanks a lot for your support and best wishes. Sushmita is with us today due to your blessings.

Thank you,
Kundan
4th November 2018
Thank you everyone for your support. We are overwhelmed with the response, good wishes and support to us. Many relatives and friends have visited and met Sushmita personally, given their wishes in facebook, and helped by sharing our post in facebook.

We have now rented a room in Siliguri for dialysis of Sushmita because dialysis facility is not available in Kalimpong. This has put me out of job. I am very thankful to my employer in Kalimpong by supporting me in this hard time.

Sushmita was discharged from hospital as doctor told that we can do dialysis by staying out of hospital, so that we can minimize our cost. We have incurred around Rs.100,000 so far from September last week. We were not allowed to keep outstanding in hospital, so we managed through borrowings which we are paying off now by utilizing the funds. The expense incurred are for:
Hospital- Rs. 39,000
Medicines and Hospital- Rs. 24,828
Aarogya Centre- Rs.4644
Ambulance etc.- Rs.6600
Medicine- Rs. 6511.09
Medicine- Rs. 2078.53
Medicine- Rs.1903
Total Invoice included above- Rs. 85,564.09
We are doing two dialysis per week, incurring around Rs.6000, for transport, dialysis etc.

Thank you all for your support. You are our hope. Please continue supporting us.

Thank you,
Kundan Pokhrel

Thank you everyone for your support. We are overwhelmed with the response, good wishes and support to us. Many relatives and friends have visited and met Sushmita personally, given their wishes in facebook, and helped by sharing our post in facebook.

We have now rented a room in Siliguri for dialysis of Sushmita because dialysis facility is not available in Kalimpong. This has put me out of job. I am very thankful to my employer in Kalimpong by supporting me in this hard time.

Sushmita was discharged from hospital as doctor told that we can do dialysis by staying out of hospital, so that we can minimize our cost. We have incurred around Rs.100,000 so far from September last week. We were not allowed to keep outstanding in hospital, so we managed through borrowings which we are paying off now by utilizing the funds. The expense incurred are for:
Hospital- Rs. 39,000
Medicines and Hospital- Rs. 24,828
Aarogya Centre- Rs.4644
Ambulance etc.- Rs.6600
Medicine- Rs. 6511.09
Medicine- Rs. 2078.53
Medicine- Rs.1903
Total Invoice included above- Rs. 85,564.09
We are doing two dialysis per week, incurring around Rs.6000, for transport, dialysis etc.

Thank you all for your support. You are our hope. Please continue supporting us.

Thank you,
Kundan Pokhrel

10th October 2018
Hello everyone,

Thank you very much for the overwhelming support to Sushmita.

Treatment progress
Sushmita is currently undergoing hemodialysis twice a week. To make dialysis more comfortable for her, we have now installed fistula in her left arm. Doctor has said that it will take around 1.5 month for fistula to set.
 

We now know that two times dialysis per week is compulsory for Sushmita till we are able to transplant Kidneys. That is her life line.

Dialysis facility is not available in Kalimpong (where we belong) and so this week we rented a small flat in Siliguri at cost of Rs.5000 per month so that we can stay there and continue dialysis. Our little daughter (3 yrs old) is in Kalimpong with her Grandparents.

By God's grace and your well-wishes, we are hopeful that Sushmita will be able to come out of this situation. Please continue support, please continue spreading words to your contact and friends, please keep our hopes alive.

Thank you.
Hello everyone,

Thank you very much for the overwhelming support to Sushmita.

Treatment progress
Sushmita is currently undergoing hemodialysis twice a week. To make dialysis more comfortable for her, we have now installed fistula in her left arm. Doctor has said that it will take around 1.5 month for fistula to set.
 

We now know that two times dialysis per week is compulsory for Sushmita till we are able to transplant Kidneys. That is her life line.

Dialysis facility is not available in Kalimpong (where we belong) and so this week we rented a small flat in Siliguri at cost of Rs.5000 per month so that we can stay there and continue dialysis. Our little daughter (3 yrs old) is in Kalimpong with her Grandparents.

By God's grace and your well-wishes, we are hopeful that Sushmita will be able to come out of this situation. Please continue support, please continue spreading words to your contact and friends, please keep our hopes alive.

Thank you.
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.241,982 raised

Goal: Rs.1,500,000

Beneficiary: Sushmita Pokhrel info_outline

Supporters (117)

A
Anonymous donated Rs.51
A
Anonymous donated Rs.7,500
PP
PRANAB POUDYAL donated Rs.51
B
Bipul donated Rs.10,000
RN
Radhakrishna donated Rs.5,000

Get well soon vanji.. God bless you.

A
Anonymous donated Rs.500

I request to all my friends plz donate whatever amount you can to safe our sister life