Mohammed Faraz hasn’t opened his eyes for 3 days now. It has also been since 3 days since his parents Shah Mazhar and Bushra have even had a sip of water, let alone eaten something. As he spends all day at the ICU by his son’s side, without sleep or rest, Shah can only think of the last words Faraz said to him before losing consciousness: ‘Papa, I think I’m dying.’
“His liver is completely damaged and it has resulted in a life-threatening infection that is slowly killing him. His body is giving up on him and if I have to save him, I need lakhs of rupees. I have already sold everything I possessed: my house, my utensils and clothes, and worst of all: my self-respect. I am still ready to beg and fall at the feet of anybody, I just want to save my son. He is the only thing I have left,”-Shah Mazhar, tearfully.
‘With Faraz running a 102 degree fever and almost collapsing, the journey was the longest three hours of our lives’Mohammed Faraz was diagnosed with biliary atresia, a severe liver disease since he was just a 3-month-old baby. Repeated visits to the hospital and follow-up treatment as a result of persistent jaundice and fever had become a way of life for him. “He started believing that God had made his body yellow because he was unique. My boy had always been positive about everything and we didn’t want to make him sad,” recalls Shah. Faraz even went to school, made friends and lived a normal life until 3 months back when he began falling sick every two days. But 3 days ago his failing liver completely gave up on his body, and his body completely gave up on him.
“At 6 am that day, he told us that he was feeling very unwell, and told me, ‘Papa, please take me to the hospital fast’. He has never told us that before, and it scared us. I begged my neighbours and arranged enough money for a car ride and set out to the hospital in Delhi from Muzaffarnagar. With our son running a high fever and almost collapsing, we thought we would lose him even before reaching the hospital,” – Bushra, mother
The donor tests for the transplant itself cost Rs 2.5 lakhs, but Shah does not even have Rs 250 in his pocketFaraz is suffering from a severe liver infection currently that needs to be controlled through ICU care, administration of antibiotics and supportive therapy. But this is not enough to save him from death – after his condition is stabilized, he will need a liver transplant at the earliest. This child is battling a life-and-death situation, but his father does not even have money for basic tests
“Whatever money I had collected that day was spent in hospital admission charges and to fund half of the treatment costs till now. I still owe the hospital a lot of money, but they are being patient and kind with me – knowing my condition. I have called up near and dear ones, and they say they will try their best to help, but time is running out. If something happens to him and he dies, I’ll also follow him to heaven,”-Shah