Harshini Needs An Urgent Liver Transplant To Survive A Fatal Disease

Meet Harshini. She is a 2-year-old toddler who gave Thirupathu and me a purpose in life. The terrible twos they say. It is indeed terrible, not because she is a handful, but because of the pain she is in. "I'm hungry Ma! Please give me some food!" she cries loud every day. I feel helpless. Don't get me wrong. We can afford food, but anything my daughter eats, she vomits. No matter what we try to do, she is dying, either because she is not getting the food she needs, or because of her damaged liver.

Harshini would try to tell me in her own words, "My stomach is hugging Ma! It is tightly hugging!" She had stopped eating. One day, she took my hand and put it on her tummy. I felt it then. She was having terrible cramps. It was as if her stomach was choking. We live in a village. The local doctor said she needs vitamins. Every day she would take the colored capsules thinking it is Gems. "Why is Gems not sweet Ma?" she would ask. I'd say, "This is a special Gems. It will make you stronger."

I thought she was getting better, but she was not

In December last year, Harshini got a fever. At first, it seemed like a viral fever. Suddenly she stopped eating. Everything she ate, she vomited. Her stomach started swelling up and tightening. Thirupathi carried her and we just ran to the hospital. They said they have to take a piece of her liver to find out what is happening. I can still hear her cries. It is was like an operation and she was awake!

Harishini has a disease called Tyrosinemia or tyrosinaemia which is an error of metabolism. She was born with it, and as a result, her body cannot effectively break down the amino acid tyrosine. It builds up in her organ and tissues, eventually causing failure. Symptoms include liver and kidney disturbances and intellectual disability. Untreated, tyrosinemia can be fatal.

We had no idea Harshini could have this horrible disease. Harshini's bloated stomach is not letting her eat, sleep or even breathe without pain. We see other children her age play with each other and live their life without a care in the world. Then we see our Harshu, she can barely walk on her own with all that pain in her stomach.

I see my beautiful baby covered in itchy dry patches. She used to run around and jump. Now, she has become half the size she was a year ago, and has no strength to even sit up. "I want chocolate Ma! Please chocolate!" she cries everytime she wants to have something that is her favorite. But, it only makes things worse. She cannot eat anything.

Harshini is our first child. Just before she got sick, I got pregnant again. Now I'm terribly scared, this baby will also have a disease like Harshini. I am so terrified that I will lose Harshini too. Medicines to manage this disease cost at least 3 Lakhs a month. The only solution is a liver transplant.

We want Harshini to get better. We want to stop the pain but we cannot even pay for hospital admission. Thirupathi wants to give his whole liver if it can save Harshini. We are ready to die for her, but no matter what we do, only money can solve our problem. Money is something we do not have.

Harshini needs a new liver. There is no other choice. If she is not cured soon, she will die. With no food, and her body filled with toxins, our child is slowly succumbing to the disease. We have no means to save her, which is why we are pleading for your help.  
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2nd July 2018
Harshini is doing well and has been discharged from the hospital. The father is also doing well. 
20th June 2018
Dear Supporters,
Thank you all for your support.

Harshini underwent a successful transplant on 6th June, her father was the donor and both of them are doing well now.

Harshini is still under observation but recovering. Doctors have indicated that she will be discharged soon if there are no symptoms of rejection or any other complication.

This couldn't have been possible without the support of you all, thank you so much for the love and support which you have shown towards her.

Thank you,,

5th June 2018
Dear Supporters,

Thank you for the wonderful support that you have shown towards Harshini. She is doing better now compared to earlier and the doctor has advised us that she will be undergoing the transplantation procedure tomorrow on 6th June. Her father is a match and he will be donating a part of his liver to her.

Thank you all once again. Do share this campaign further with your friends and family and help them in raising funds towards her treatment. Will keep you posted.

Thank you!
raised of Rs.1,600,000 goal

503 Supporters

Beneficiary: Harshini B info_outline

Supporters (503)

Anonymous donated Rs.2,000
about 1 month ago
Anusha donated Rs.1,000
about 1 month ago
lalbihari donated Rs.500
about 2 months ago
srinivas donated Rs.500
about 2 months ago
Anonymous donated Rs.50
about 2 months ago
Anonymous donated Rs.1,000
about 2 months ago