Akshaini fighting rare type of blood cancer relapsed post transplant. | Milaap
This campaign has stopped and can no longer accept donations.

Akshaini fighting rare type of blood cancer relapsed post transplant.

A lil warrior needs urgent help. Please read:

Akshaini aged 8 years was diagnosed with leukemia (CML in blast crisis, a rare type of blood cancer in children) in June 2018. After undergoing intensive chemotherapy followed by radiation, she underwent stem cell transplant in Dec 2018. Luckily her baby brother Rishaan (2.5 yrs) was found to be a perfect match for her and he donated stem cells to Akshu. Things were looking good and she was on the way to recovery when the doctors found out that she relapsed in June 2019. She was again put on oral chemo.

After this she had severe health problems and battled several infections, seizures, gallbladder stones, severe abdominal pain,  high BP,  mouth ulcers, constipation,  weight loss, loose motions, intussusceptions, enlarged spleen, kidneys and lung issues.

Because her body is not producing healthy cells, she has to be transfused with blood and platelets every 2-3 days. Due to extremely low platelets, she starts bleeding from the nose, lips, tongue, eyes, stool and even vomits blood.

Needless to say, treatment is extremely expensive. Her parents have exhausted all their savings and had to turn to friends, family and crowdfunding websites like Milaap to gather funds for her treatment. Because of high prices of chemo drugs in lakhs, expensive antibiotics, investigations, frequent hospitalizations and transfusions, her parents are finding it difficult to fund her treatment. Sometimes they even need to chose between medicines and hospital bills!

In addition, sometimes Akshaini has to be kept in an isolation room with extremely sterile environment. Her body is so fragile that even a smallest infection can be fatal. All this adds cost at every step.

For a middle class family to spend 70-80 lakhs on treatment is very difficult. Also, because she needs care 24×7, her parents have to take frequent leaves and cannot go for work.

Akshaini is a fighter and has braved all treatments and painful procedures with a smile. The only thing she wants is to get well soon so that she can go back to school and enjoy simple life like her friends.

The monstrous disease has come back and it is multiplying aggressively in her little body. Doctors have said that she has very little chances of survival. Hence she has been put on supportive care wherein the current focus is to stabilize her and prevent her condition from deteriorating. She is given transfusions as and when required to improve her quality of life.

However, as parents no one wants to hear that nothing more can be done for their child. Her parents are trying desperately for more treatment options in India and abroad to save their baby. They want to keep trying till the very end in the hopes that something might click and a miracle would happen!

This is a desperate plea for financial aid. Even a small contribution can go a very long way and lessen the financial burden on her parents. Please help this child and the family generously.🙏🏻

Parents contacts in case anyone would like to get in touch:
Father 9146000231
Mother 9769698250

Kindly note that due to Akshu's delicate health condition, her parents are at the hospital most of the time taking full time care of her. Hence it may not be possible for them to respond to all calls immediately. We request you to please drop in a SMS or WhatsApp in case they are not able to answer calls.
Doctor certificate
Doctor certificate
Doctor Certificate for Medicine
Doctor Certificate for Medicine
After Relapse doctor suggestions for treatment
After Relapse doctor suggestions for treatment
Ask for an update
29th November 2019
Dear All,
Now there won't be any admission posts, no discharge posts, no prayers post, no new photos, no updates, no posts for funds support, no Milaap forwards.

My heart breaks into a million pieces while writing this update. We lost our darling Akshaini on 26th Nov 19 early morning after a brave, brave fight of almost 18 months.

We are overwhelmed with the love and blessings and all the support you have extended to us. This would really not have been possible without your help.

Akshu always knew that there are many people who have helped her parents gather funds for her treatment. She was aware that there are many, many people who are continuously praying for her to get better and sending her loads of blessings and good vibes. She always used to tell us that once she is well, she would throw a huge party for all her well-wishers and give them handmade greeting cards.

Akshu was extremely attached to me. When she saw her beloved Mumma in tears, she said "Akshu ko kuch nahi hoga, Don't cry". Which translates to "Nothing will happen to Akshu, dont cry". That was the extent of willpower this little child had!

Her wishlist was endless. She fought till the very end. But the monstrous disease was too much for her little body. She smiled a beautiful, she said "Now I am feeling better" and took her last breath with divine smile looking at mumma, holding her hands.

Akshu was a gifted, extraordinary child who was extremely observant and mature for her age. Music was her passion. She has touched so many hearts,  spread so many smiles and amazed everyone with her willpower and determination.

Nothing in the world can replace her and the loss is terrible and painful. She is pain-free now. We are thankful that an angel like her chose us to be her family, lived with us and loved us. We consider ourselves truly lucky and blessed and we are so, so proud of Akshu, the brave and strongest child!

We know that she is now watching us from up there and showering us with all her love.

Please take care of yourself and your loved ones. I wish no one should go through any major illness.

Thank you for all your help. Thank you for being there always.

Stay happy and pain free my baccha. Mumma Papa Rishaan love you a lot.

From
Seema, Siddhu and Rishaan.
And lots of love from Akshu.
Dear All,
Now there won't be any admission posts, no discharge posts, no prayers post, no new photos, no updates, no posts for funds support, no Milaap forwards.

My heart breaks into a million pieces while writing this update. We lost our darling Akshaini on 26th Nov 19 early morning after a brave, brave fight of almost 18 months.

We are overwhelmed with the love and blessings and all the support you have extended to us. This would really not have been possible without your help.

Akshu always knew that there are many people who have helped her parents gather funds for her treatment. She was aware that there are many, many people who are continuously praying for her to get better and sending her loads of blessings and good vibes. She always used to tell us that once she is well, she would throw a huge party for all her well-wishers and give them handmade greeting cards.

Akshu was extremely attached to me. When she saw her beloved Mumma in tears, she said "Akshu ko kuch nahi hoga, Don't cry". Which translates to "Nothing will happen to Akshu, dont cry". That was the extent of willpower this little child had!

Her wishlist was endless. She fought till the very end. But the monstrous disease was too much for her little body. She smiled a beautiful, she said "Now I am feeling better" and took her last breath with divine smile looking at mumma, holding her hands.

Akshu was a gifted, extraordinary child who was extremely observant and mature for her age. Music was her passion. She has touched so many hearts,  spread so many smiles and amazed everyone with her willpower and determination.

Nothing in the world can replace her and the loss is terrible and painful. She is pain-free now. We are thankful that an angel like her chose us to be her family, lived with us and loved us. We consider ourselves truly lucky and blessed and we are so, so proud of Akshu, the brave and strongest child!

We know that she is now watching us from up there and showering us with all her love.

Please take care of yourself and your loved ones. I wish no one should go through any major illness.

Thank you for all your help. Thank you for being there always.

Stay happy and pain free my baccha. Mumma Papa Rishaan love you a lot.

From
Seema, Siddhu and Rishaan.
And lots of love from Akshu.
8th November 2019
It’s scary to see active bleeding in her stools, it’s heart-wrenching to see her gums bleeding and blood spilling from her mouth. Bruising, patches over the body. She cries a lot due to severe pain. Sometimes, she needs our support to move. She looks pale, tired, low with energy. Due to the progress in disease her bone marrow not generating new blood components and falling very often.
Hence, she needs blood and platelet transfusions every 2nd / 3rd day, sometimes multiple units. She is fed up with visiting the hospital in an emergency at any time and it has become very frequent now. We are rushing to the hospital with both the kids even at midnights very often. Each hospitalization for transfusions costs around Rs. 30,000 to 40,000 or more depending on the number of units transfused, much more if there are some other infections, health issues or investigations. In her last admission in isolation, we had to decide whether we pay the hospital bill or to buy her monthly medicine, we decide to keep medicine on hold till we arrange for it, as the isolation cost and total bill was very high.
Like any other parents, we also don’t want our child to suffer without treatment (though its supportive care) due to funds issue. We can’t stop her supportive care treatment and keep her at home doing nothing. We are still positive and we will keep go on.
We all know she is a fighter and hats off to her willpower and strength. She is missing her school, her friends, outings, her classes and she visualizes herself going to school very soon and enjoying a life full of fun with her friends and SHE WILL. Praying and we truly believe that MIRACLE WILL HAPPEN!!
Dear all, you have supported Akshaini and us in this entire journey from the beginning generously for the worthy cause. Without all of your support, it would have not been possible to come so far. She is still fighting so bravely, please continue your support. Its a humble request to all of you to please share the link as much as possible.
Thank you so much for being part of our toughest phase of life.

Regards,
Siddhu and family.
It’s scary to see active bleeding in her stools, it’s heart-wrenching to see her gums bleeding and blood spilling from her mouth. Bruising, patches over the body. She cries a lot due to severe pain. Sometimes, she needs our support to move. She looks pale, tired, low with energy. Due to the progress in disease her bone marrow not generating new blood components and falling very often.
Hence, she needs blood and platelet transfusions every 2nd / 3rd day, sometimes multiple units. She is fed up with visiting the hospital in an emergency at any time and it has become very frequent now. We are rushing to the hospital with both the kids even at midnights very often. Each hospitalization for transfusions costs around Rs. 30,000 to 40,000 or more depending on the number of units transfused, much more if there are some other infections, health issues or investigations. In her last admission in isolation, we had to decide whether we pay the hospital bill or to buy her monthly medicine, we decide to keep medicine on hold till we arrange for it, as the isolation cost and total bill was very high.
Like any other parents, we also don’t want our child to suffer without treatment (though its supportive care) due to funds issue. We can’t stop her supportive care treatment and keep her at home doing nothing. We are still positive and we will keep go on.
We all know she is a fighter and hats off to her willpower and strength. She is missing her school, her friends, outings, her classes and she visualizes herself going to school very soon and enjoying a life full of fun with her friends and SHE WILL. Praying and we truly believe that MIRACLE WILL HAPPEN!!
Dear all, you have supported Akshaini and us in this entire journey from the beginning generously for the worthy cause. Without all of your support, it would have not been possible to come so far. She is still fighting so bravely, please continue your support. Its a humble request to all of you to please share the link as much as possible.
Thank you so much for being part of our toughest phase of life.

Regards,
Siddhu and family.
30th October 2019
Dear All,

Her condition is not well, we have to rush to hospital every 3rd day due to her HB and Platelets are very low.
Hence requested to pray for her.

Thank you
Siddhu..
Dear All,

Her condition is not well, we have to rush to hospital every 3rd day due to her HB and Platelets are very low.
Hence requested to pray for her.

Thank you
Siddhu..
Content Disclaimer: The information and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
If such claims are found to be not true, Milaap, in its sole discretion, has the right to stop the fundraiser, and refund donations to respective donors.
Rs.3,061,465 raised

Goal: Rs.5,000,000

Beneficiary: Akshaini info_outline

Supporters (907)

Ga
George donated Rs.1,000
LS
Late donated Rs.1,500

Wish you get well soon.

PG
Pawas donated Rs.3,160
Smaran
Smaran donated Rs.2,500

Praying for Akshaini to bounce back to a healthy and happy life!

A
Anonymous donated Rs.2,500
B
Bhawna donated Rs.2,500

God bless you...get well soon