10-Year-Old With Rare Genetic Blood Disorder Has 30 Days To Get Life-Saving Transplant | Milaap

10-Year-Old With Rare Genetic Blood Disorder Has 30 Days To Get Life-Saving Transplant

“Whenever he would get a new car toy or little gadget, he would open it up and examine the parts. His curiosity wouldn't let him rest until he finished putting it back together. Then he would show it to me and talk about it so fondly, explaining how it works, with a sparkle in his eyes. Now, he can barely even hold his toys, let alone play with them. My 10-year-old has become a shell of the happy child he once was” - Sukanya, mother

He had spots all over his body owing to his low platelet count

Charan was only 6 years old when his plight began. He developed a weird rash on his skin; it had darkened quite a bit and there were spots all over his body. His parents took him to a local doctor, who advised them to get a bone marrow test done. The rash was not a skin problem, but a clear sign that his platelet count was low.

“The thought of getting a bone marrow test scared us. So we tried to avoid it hoping that the medicines to improve his platelet count would work. But they didn’t, and my son had a persistent high fever. I knew then that we couldn’t delay the bone marrow test any further. The wait for the results felt like an eternity. Fear and worry, combined with our anticipation, would constantly torment us. Then, we were told that our son was suffering from a rare genetic blood disorder…” - Guru Moorthi, father

His body has a cell-damaging gene that decreases cell production

These grief-stricken parents were told that their son is suffering from Fanconi anemia, a genetic blood disorder that mainly affects the bone marrow. It is a rare disease that is passed down through families (inherited). Charan’s body has an abnormal gene that damages cells, which has resulted in decreased production of blood cells.

For about 5 years now, Charan has been on medication and regular blood transfusions to improve his blood count. But now, his treatment isn’t working anymore and his condition is deteriorating rapidly. A bone marrow transplant is his only chance at survival, and he needs it at the earliest or his life will be at risk.

Only with your help can they save their child

Hailing from a small town in Karnataka, about 100 kms away from Bangalore, Guru Moorthi is a small shop owner. His income is sufficient to sustain his family, but Charan’s mounting hospital bills are beyond his means. INR 25 lakhs is an unimaginably large amount for these parents to afford.

“We’ve done all we were capable of doing to save my son. I’ve spent over 4 lakh rupees - everything I had saved up for my children’s future has gone into Charan’s treatment. Now they tell us we have to hurry and make arrangements for his bone transplant or we could lose him. With nothing left, I don’t know what to do. I don't know who else to ask for help, but you. Please help me save my boy.


Charan has two sisters that love him dearly and are eagerly waiting for him to come back home. Seeing that the blood disorder plaguing Charan is genetic, there is a possibility that his older sister too could suffer from it. She is currently undergoing regular blood check-ups, as well.

Guru Moorthi and Sukanya are appealing to you for your generous support. Without your help, they won’t be able to save their son. Through your contribution, Charan can recover from this disease and get a second chance at life. Click here to donate.
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Patient Charan is 10 years old, living in Bengaluru, Karnataka
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Being treated in St. JohnS Medical College Hospital, Bengaluru, Karnataka

Receiving Stem Cells Transplant treatment for Fanconi Anemia

Click here to know more about Charan
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