At 10 Years, This Boy Fights A Rare Blood Disorder. Parents Seek Help

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29th August 2016
Dear Supporter,

Thank you for your overwhelming support. Thirumalai's father has expressed his gratitude to each of you.

Thirumalai Nambi has been admitted and the doctors have inserted the line catheter for the administration of medications. Doctors have identified a matched unrelated donor for his bone marrow transplant. The donor will visit the hospital on September 5th and the doctors will infuse the stem cells on Thirumalai the next day.  Do keep him your prayers. It's because of your support that he can now undergo the transplant.

Thank you,
Team Milaap.

10-Year-Old Thirumalai Nambi sustained wounds on his hand and legs from a fall while he was playing. But his wounds revealed something else. Within few hours after he fell, there were visible lumps in his legs and hand next to his wounds. Doctors identified that he has a bone marrow disease, seen one in 1,30,000 children. His disease, if  not treated immediately will make him prone to cancer and organ failures. His father runs a small shop  and the family is devasted without any help to their son's treatment.

Thirumalai Didn't Show Any Signs Of Illness Till Last Month

Thirumalai was a healthy child and did not show any symptoms of this disease until the last month. This finding came  as a shock to this poor family who was already finding it difficult to pass each day. Thirumalai's father Rangaraj runs a petty shop near his house. Thirumalai has an elder sister who is 15 years old. His mother is a homemaker. When he was first taken to the hospital, the doctor did a blood test which showed that it blood counts were really low. Seeing the visible symptoms, the doctor there referred them to Meenakshi Mission Hospital in Madurai. Doctors there confirmed that this is a case of Fanconi Anemia, a rare blood disorder. Some medical databases reveal that only 2000 cases of this have been reported till now.

It is a bone marrow disease which is likely to affect his organs and make him susceptible to cancer. Doctors recommendation is a bone marrow transplant. Unfortunately, all the family members are no match to his donor. The search for an unrelated donor has begun.

His Father Runs A Small Shop And Spends His Daily Income For Thirumalai's Treatment

"I earn less than 300 every day. Some I get lucky to get Rs.800. I never got any money to save. With that money, I had to feed 5 mouths including my mother. But when we knew our son's disease, I didn't see a way other than using my daily income. For one visit to the hospital for blood transfusion and returning back,we spent Rs.7000. It will happen ever 15 days", says Rangaraj.

The estimation given for his transplant is Rs.20 lakhs. With the realtives turning a blind eye, Rangaraj and family are left with no option to raise such a huge amount.

He Survives On Blood Transfusions Done Every 15 Days

Thirumalai visits the hospital once in 15 days and gets  a blood transfusion done. The frequency of blood transfusions will increase in the coming months and this can cause other consequences. He enjoys playing with his friends a lot

How You Can Help

The estimated amount for transplant is quite impossible for the family to arrange. They are doing their best to arrange for whatever is possible but seek our support in this.
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