Please Help Yuvaan Ramtekkar Get The World's Costliest Drug! | Milaap
Please Help Yuvaan Ramtekkar Get The World's Costliest Drug!
of Rs.16,00,00,000
1942 supporters
  • Rupali

    Created by

  • YR

    This fundraiser will benefit

    Yuvaan Ramtekkar

    from Pune, Maharashtra

My name is Rupali Ramtekkar and I am here to raise funds for my only son Yuvaan Ramtekkar who is 1 year old. He has been diagnosed with 'Spinal Muscular Atrophy Type 1', a very rare genetic disease. 

SMA is treated with the world's most expensive drug 'Zolgensma' which costs 16 crore rupees as it is not available in India.

SMA is a deadly genetic disorder in which the gene that is responsible for the entire muscle function of our body is defective. There is a breakdown of the muscles of the brain and Spinal cord and the brain cannot send signals to the rest of the body. Day-to-day activities become difficult. Breathing, eating, swallowing, or even just turning on the bed is a painful process.

Seeing our son in pain every day with the requirement of such a large amount of money to save him has broken us.

I request everyone of you to come forward and donate at your convenience. Your small help can save my son.

SMA affects 1 in 10,000 babies and is the #1 genetic cause of infant death worldwide.

Zolgensma comes at a steep cost of INR 16 crores (USD $2.1 million). 

Please come forward to support my cause. Any contribution will be of immense help. Do contribute and share this campaign link with your friends and family.

Read More

Know someone in need of funds for a medical emergency? Refer to us