[Dec 4th, 2020] We had to rush to the ER as our father was rejecting all the feeds given to him, had a distended abdomen, low body temperature, and full body edema. He was given fluids, medications, and antibiotics through IV. The swab sample for his COVID-19 RTPCR test was collected and sent to the lab. His COVID-19 report came negative and he was shifted to the ICU at 10:30 AM the next day. His body started swelling, body temperature, and blood pressure started going further down during the treatment. He is in a very critical state. Please read the "updates" section for the details.
# Forth ICU Admission (During Dec 4th, 2020 - Dec 22nd, 2020)
# Third ICU Admission (During Feb 5th, 2020 - Feb 17th, 2020)
[Feb 24th, 2020] We presented him to the ER for further evaluation. Reports were fine and currently being managed at home ICU with 24X7 nursing care, like ever before.
# Original Story of The Campaign (Story since the ALS diagnosis till home ICU care as of November 18th, 2019)
Our father (Mr. Surendra Kumar Narula) was diagnosed with ALS in August 2016 (with symptom onset in 2015) and ever since then, it has changed the life of our entire family. Due to the respiratory failure in May 2019, he was tracheostomized and was put on permanent breathing support (mechanical ventilator) at the hospital. Moreover, complications in ICU led to uncontrollable seizure episodes, and infection in the lungs (Klebsiella Pneumoniae), treatment of which led to intense financial distress. Since the disease is irreversible, he has to stay like this forever. Therefore, as per the doctor's advice, we took him back home after around three weeks of ICU stay and ever since then we have been caring for him round the clock at our home ICU setup.
He is currently immobile and ventilated through a BiPAP machine connected to a tracheostomy tube that is surgically inserted in his throat/ windpipe/trachea. Moreover, he is fed through a feeding tube (PEG) which was attached to his stomach through surgery in September-2018. Despite all these dependencies, he is fully alert, conscious and responds to "yes-no" type questions by raising his right hand, which still has some mobility left. He also has some control over facial muscles and is able to express emotions. Please see the videos below [with English subtitles (by clicking "cc") if you may like to].
Please help us in keeping our father staying alive and smiling like ever before.