Without Urgent Treatment, 3-Year-Old Sathvik Will Lose His Vision | Milaap
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Without Urgent Treatment, 3-Year-Old Sathvik Will Lose His Vision

Sathvik (3) started slowly losing his vision when he was just a few months old, but his parents didn’t realise it until he started walking around by feeling things around him. They were devastated when they were told that their only son was losing his vision to a deadly disease. Sathvik needed a bone marrow transplant and they did everything they could to afford it. His parents were hoping for a healthier life for him. Unfortunately, their happiness was shortlived.  
 

Sathvik was diagnosed with a rare genetic disorder and he underwent a bone marrow transplant soon after

Little Sathvik was diagnosed with osteopetrosis, a rare genetic disorder whereby the bones harden and become dense. The disease is extremely rare and occurs 1 in 3.3 million. The disorder affects the cranial nerve causing blindness, deafness and facial nerve paralysis. Sathvik has partially lost his sight due to this dreadful disease. Only a bone marrow transplant could save Sathivik from this disease. Fortunately, his father Nageshwar was a suitable donor. Fearing that their only son will lose his sight and eventually his life, Sathvik’s parents borrowed 30 lakhs for the life-saving transplant.

After the transplant, his parents hoped he would recover but to their despair, he's now suffering from a dangerous infection

A few months after the transplant, Sathvik was diagnosed with cytomegalovirus infection, that affects the digestive system and nervous system and can also cause vision loss. Sathvik needs to stay in the hospital for 15 days more, otherwise, he will lose his vision and life to this life-threatening infection.


“Every time I sit beside him and read out stories to him, he would eagerly listen to me till the very end. He’s such a smart and loving child. I thought that all of my son’s suffering had finally come to an end. I was even planning to send him to school. I never thought he would have to suffer more. Now his condition is only getting worse because of a life-threatening infection. Every time I feed him, he throws up immediately. He looks dull and exhausted because of extreme weakness. We nearly lost him once because of the dreadful disease and now we risk losing him again to this dangerous infection.” - Sujatha, mother.


Sathvik has a high fever every other day. He constantly complains about the pain in his stomach. He doesn’t eat food or drink even a sip of water. He's growing weaker and thinner with each passing day. He has already been through so much for his age and his parents cannot see their son go through this endless suffering.

Happy and cheerful Sathvik before his health got worse

Nageshwar has spent everything that he had for the transplant and is now struggling to afford treatment for the infection

With the little income Nageshwar earns as a daily wage labourer, it’s been difficult for him to provide treatment for his son. He did everything he could to provide his son with a life-saving transplant by borrowing from relatives, hoping and praying that his son would finally be free from the pain. But now watching him suffer once again because of the severe infection, he fears he will lose his son without treatment. Nageshwar has exhausted all the money he had and needs your support to save his son.

How you can help

Little Sathvik has partially lost his sight to the rare genetic disease. Any delay in treatment would make him completely blind and eventually affect his life as the deadly infections spread. With no money left, Sathvik’s parents fear they will lose their only son without help.


Estimation letter
Estimation letter
Ask for an update
15th March 2019
Dear Supporters,

We have some unfortunate news to share with all of you.

Sathvik is no more with us. Sathvik was undergoing his treatment but his health deteriorated and he couldn't make it.

All the funds raised will be utilized to clear his medical expenses.

May his soul Rest in Peace.

Regards,
Goutham
Dear Supporters,

We have some unfortunate news to share with all of you.

Sathvik is no more with us. Sathvik was undergoing his treatment but his health deteriorated and he couldn't make it.

All the funds raised will be utilized to clear his medical expenses.

May his soul Rest in Peace.

Regards,
Goutham
20th November 2018
Dear Supporters,

Thank you for the love and support shown towards Sathvik.

He is in the hospital and is undergoing treatment. We noticed that he had blood in his urine. He was diagnosed with CMV fever (cytomegalovirus) and is undergoing IV treatment for the same.

Please continue sharing his campaign with your friends and family!

Regards,
Nageshwar (Father)
Dear Supporters,

Thank you for the love and support shown towards Sathvik.

He is in the hospital and is undergoing treatment. We noticed that he had blood in his urine. He was diagnosed with CMV fever (cytomegalovirus) and is undergoing IV treatment for the same.

Please continue sharing his campaign with your friends and family!

Regards,
Nageshwar (Father)
Rs.392,953 raised

Goal: Rs.1,000,000

Beneficiary: Sathvik A info_outline

Fundraising campaigns (1)

Supporters (279)

Kp
K donated Rs.1,000

My prayers with you sathvik

NK
Naveen donated $7.14
S
SRAVANIJASTI donated Rs.500
SR
SUBBA donated Rs.500
A
Anonymous donated Rs.2,500
Krishav
Krishav donated Rs.500