Sathvik was diagnosed with a rare genetic disorder and he underwent a bone marrow transplant soon afterLittle Sathvik was diagnosed with osteopetrosis, a rare genetic disorder whereby the bones harden and become dense. The disease is extremely rare and occurs 1 in 3.3 million. The disorder affects the cranial nerve causing blindness, deafness and facial nerve paralysis. Sathvik has partially lost his sight due to this dreadful disease. Only a bone marrow transplant could save Sathivik from this disease. Fortunately, his father Nageshwar was a suitable donor. Fearing that their only son will lose his sight and eventually his life, Sathvik’s parents borrowed 30 lakhs for the life-saving transplant.
After the transplant, his parents hoped he would recover but to their despair, he's now suffering from a dangerous infectionA few months after the transplant, Sathvik was diagnosed with cytomegalovirus infection, that affects the digestive system and nervous system and can also cause vision loss. Sathvik needs to stay in the hospital for 15 days more, otherwise, he will lose his vision and life to this life-threatening infection.
“Every time I sit beside him and read out stories to him, he would eagerly listen to me till the very end. He’s such a smart and loving child. I thought that all of my son’s suffering had finally come to an end. I was even planning to send him to school. I never thought he would have to suffer more. Now his condition is only getting worse because of a life-threatening infection. Every time I feed him, he throws up immediately. He looks dull and exhausted because of extreme weakness. We nearly lost him once because of the dreadful disease and now we risk losing him again to this dangerous infection.” - Sujatha, mother.
Sathvik has a high fever every other day. He constantly complains about the pain in his stomach. He doesn’t eat food or drink even a sip of water. He's growing weaker and thinner with each passing day. He has already been through so much for his age and his parents cannot see their son go through this endless suffering.
Happy and cheerful Sathvik before his health got worse