This post is about a smart young boy who was active and happy. Everyone's pet.. Samanuai.
And then he was afflicted by Adrenoleukodystrophy..
A very rare condition that no one would want to have Something that disintegrated the lining around the nerves in his brain.
Investigations and treatments ate into the resources of a fairly stable family; that they now need help to further take care of the child's needs.
He needs regular physiotherapy. And many a time he has to be rushed to the hospital for urgent care.
All those times his father, a hard working man is unable to go for work; upsetting any meagre resources further.
Each month they need a minimum of 50000 or more, just for treatment. average Expenses till date is more than 50lakh for past six years and expected per year around 6 lakh.
One thing they can't afford to sell, is their car; as it is very much needed when he needs to be taken to hospitals in a hurry.
A normal family like yours' and mine. Unwilling to use their son's plight as a means of garnering more money. They declined going to the media.

But, they need our help to take care of their son.

Samanuai's condition had stabilized a bit in the recent past. Not that his condition improved. But treatment helped his condition from deteriorating further.
Unable to move his limbs or close his eyes.. his mother's ardent prayer is that one day he will be able to take care of himself or atleast convey his needs so that they can care for him even better.
A couple of weeks back, he collapsed and at the hospital, he had a seizure. A scan confirmed an area in his brain, indicating epileptic attacks.

He needs further investigation.
A most sweet boy with large eyes and the sweetest smile. But he is in pain.

The family needs urgent monetary help.
#Help_Samanuai

Whatever amount you can give.. big or small.. don't hold back.