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Help Pankaj Kumar Fight Bardet Biedl Syndrome

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My name is Ramesh Kumar and I am here to raise funds for my 14 year old son Pankaj.

It has been a while now since Pankaj has not been able to attend school and lead a normal life like his friends do. He is suspected to have Bardet Biedl Syndrome , an autosomal recessive disorder with a wide range of clinical features. The case is peculiar for its rarity.

Pankaj is a 14 year old boy residing in Gurugram , Haryana. This rare disease was detected when he was about 6 years of age. Alongwith showing features of obesity , polydactyly since then, he has now been diagnosed with an acute renal failure where the only hope of his survival is a kidney transplant. Initially , he was being treated at the PGIMER-Dr Ram Manohar Lohia Hopital,New Delhi.

He is now being referred to at the Medanta , The Medicity in Delhi NCR , Gurugram. While he had no issues with his vision earlier, he has undergone a complete visual loss since 2 years now. Pankaj has completed education till class 7th from a government school in Nayagaon in the year 2016-17. He has dropped out from school due to the severity of the implications of the disease and his chronic health conditions. His father being a gardener and mother being a housewife, are finding it difficult to arrange the expenses for his proposed kidney transplant which at present, is estimated to be over about 9 lakhs . Currently on dialysis twice a week , he is in need of an immediate kidney transplant with his mother as the donor. This means a lot of expenditure is required for the regular dialysis and other treatments.
As mentioned if a kidney transplant is not done at earliest, ultimately it can lead to fatality. His family is currenty going through a difficult time and a financial crisis. They need urgent financial help to bear the cost of the treatment.
The funds raised will be used towards:

Transplant procedure
Doctor's Consultation Charges
Hospital Bills
Post-operative care
Medicines and other miscellaneous expenses

We need all the help in mopping up the contribution. The support will ensure that Pankaj can continue his treatment and bounce back to a normal lifestyle. Any contribution will immensely help his family in this time of need. Please help by contributing and spreading the word. Please come forward to help me save my son. Any contribution will immensely help my family. I need your support to bring him home. Do contribute and share this campaign link with your friends and family.

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16th October 2019

Dear Supporters,

Thank you for the love and support you have shown Pankaj.

Pankaj will now be visiting the hospital to undergo initial tests as prescribed by the doctors. Withdrawn funds will be utilised to settle hospital expenses incurred on the same.

Please pray for his health.

Regards,
Nyamat