Let’s open the world of sounds to Nathaniel!

Story
Updates (6)

A little over a year ago, we were preparing for the birth of our first baby. We had a beautiful pregnancy and were expectantly awaiting the arrival of our little bundle of joy. Little did we know that we were also being prepared for the biggest test of faith.

Nathaniel’s story begins in the Neonatal ICU, where he spent the first two months of his life on earth! From the warm comfort of his mother’s womb he was taken right into the ICU, and prepared for his first surgery which happened on the second day of birth. We felt like we were in the midst of a tornado when we learnt that our beautiful boy was born without an anal opening, a birth defect which was then rectified through 3 major surgeries. The first six months was a time of perseverance, as we saw Nathaniel battle through a surgery every two months.

Meanwhile we also got a diagnosis which confirmed that he was sporting an extra chromosome on the 21st pair, a condition known as Down’s syndrome. As much as we were overwhelmed, we knew that this was the beginning of something extraordinary.

When Nathaniel was nine months old, we received confirmation that he has profound hearing loss; post which we almost immediately, started training him with hearing aids hoping that it would help.

Nathaniel adapted well to having a device sticking around his tiny ears, and upon further consultations we were advised to consider a cochlear implant for both his ears, given the severity of the loss. While the hearing aids would help him to hear sounds, it is unlikely to be effective in aiding him to attain speech. The implants would allow him to hear with more clarity which is important to attain speech.

The surgery is planned for November 2019, and we are eagerly hoping that Nathaniel would soon be able to embrace the world of sounds.

Needless to say, the journey with this little boy has been trying in many ways and yet so profoundly rewarding ! Nathaniel’s story is about to get more beautiful and we are committed to giving him the best of what we can as he strives to win these battles towards good health.

We are grateful that you chose to be a part of this journey in your own special way,do extend any support that you can afford. Also, your prayers would build an army for Nathaniel in his battles, do remember him.

Much obliged

Job & Sarah

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UPI: givetomlpjob@yesbankltd (Copy to clipboard)

Virtual account name: Job - Milaap
Account number: 8080811092883
IFSC code: YESB0CMSNOC

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Details for direct bank transfer / UPI

UPI: givetomlpjob@yesbankltd (Copy to clipboard)

Virtual account name: Job - Milaap
Account number: 8080811092883
IFSC code: YESB0CMSNOC

Click here to read the instructions before you make a bank transfer.

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4th November 2019

Dear Supporters,

Thank you for your love. Nathaniel has come down with a viral infection, the surgery has hence been postponed by two weeks to avoid any undue complications. We shall keep you posted.

2nd November 2019

We are getting closer to our dream of giving Nathaniel the ability to hear clearly. The surgery is now scheduled for 6th November. We have repeated the hearing test to evaluate any changes and the results are consistent with the previous tests. A new development last week is in terms of the device that’s being implanted (details are in the document which is uploaded). Nathaniel will be implanted on the right ear to start with and we will be using a Cochlear device for the same. The surgery will be followed by three weeks of recovery time post which the external audio processor(Kanso processor) will be fitted. Post this he will be receiving auditory verbal therapy and speech therapy twice a week.
Please start raising him in your prayers as we prepare for the surgery, recovery and rehabilitation in the coming weeks and months. Thank you again for making this happen!

22nd October 2019

Nathaniel's surgery is expected to take place in 2 weeks after a couple of tests which has to be done , we are keeping this group open to share more updates after the surgery is completed, we thank you all for the love and support you have shown Nathaniel.