He was born healthy and angelic like any other new-born. Shortly after a month, i.e., on 12th October 2018, he began crying softly. I lifted him up in my arms to comfort him but he suddenly stopped responding - and he fell unconscious! My blood ran cold, I tried waking him up. I screamed and called my husband and we rushed to the hospital. On the way, I kept kissing his forehead and hands and tried talking to him, in a hope that he would respond, but he didn’t.
The doctors at Jaypee hospital ran a series of tests like CT Scan and MRI and told my husband and I that Ghazi had a Brain Aneurysm. They advised us for an immediate brain surgery. My heart sank and I fell to the ground in shock. We were running out of time and so we agreed for the surgery. My little and delicate Ghazi went under the knife and his head was cut open. The surgery went on for 6 hours and I waited outside the operation theatre with bated breath.After the first surgery, Ghazi was discharged and we were advised to take him to regular Occupational Therapy for a few weeks. I thought after the regular sessions of the therapy, my family could get behind our sorrowful days. But my baby’s suffering was far from over. A few months later, I saw a bump on his head which looked very unusual to us.
Fearing the worst, my husband and I ran to see the doctor again and my baby again went through diagnostic tests. This time they told us - Ghazi has Hydrocephalus, and that he would need another surgery or his head would continue to grow.
In Hydrocephalus (also known as ‘water on the brain’), there is an abnormal accumulation of cerebrospinal fluid (CSF) within brain cavities (ventricles). The treatment for this is the surgical implantation of a device called Shunt. This device directs the fluid to the abdominal cavity where it gets absorbed.
My husband and I had no courage to see our child go through another major surgery. We ran from one doctor to another but our hopes were crushed every time. With no choice left, we had to put our baby through another surgery. We used all our savings up till the last penny and borrowed money from our relatives and friends. We thus spent over Rs. 40 lakh, in a hope that we could win our baby’s life back.
After multiple brain surgeries so far, my baby still can’t talk. He can’t crawl, let alone walk! He can’t sit and has no grip on his neck. He can only see and recognize me - everytime I go near him, he smiles like a shining sun! The enlarged skull size as a consequence of Hydrocephalus puts immense pressure on his limbs and eyes. It restricts his vision, physical and mental development. Even though Hydrocephalus is managed now, my baby needs remodelling surgeries to bring his skull back to normal.
My husband and I sell garments for a living. We live in a rented house and come from a middle-class background. For Ghazi’s full recovery and a better future, we need another Rs. 40 lakh. Amid lockdown, our incomes have taken a hit and we have absolutely no means to continue his treatment.
My husband and I urge you to help us save our son from a life of disability. Please help us bring him out of suffering so he could have a normal childhood. Your donations to this fundraiser will bring my baby closer to a brighter future. Please also share this on your social media accounts so more people like you can contribute to our cause.