Please Help Me In Saving My Little One's Life | Milaap
Please Help Me In Saving My Little One's Life
6%
Raised
Rs.96,42,583
of Rs.17,00,00,000
63006 supporters
  • MM

    Created by

    Mudit Mohun
  • do

    This fundraiser will benefit

    daughter of Mudit

    from Noida, Uttar Pradesh

Tax benefits for INR donations will be issued by MLPI FOUNDATION

Mishika, my 1-year-old daughter, has been fighting SMA Type-1 with tenacity.

Everything felt so happy and joyful with the news of becoming parents of a beautiful daughter , in July 2022. She is a happy, bright child and the love of our life. As first-time parents we spend all of our spare time(and more!) with her. She is such a joy and brings so much positivity and love in our lives and completes our family like nothing else.

A few days ago, however, we got some shocking news that has shaken us to the core. She was diagnosed with a life-threatening rare genetic disease "Spinal Muscular Antropy (SMA)- Type 1"a severe form of disorder which means Mishika cannot control the movement of her muscles.

Over time, we are told that she will have trouble doing basic things like moving her hands, swallowing food or milk,  holding her head up and even breathing.

But we never thought life could be so unpredictable, our lives turned upside down when we learned about the disease. Our hearts broke to know my baby was caught by SMA.

Her treatment is going under Dr. Ratna Dua Puri, Chairperson, private Hospital, New Delhi. We are being told that the treatment is available in India, but the cost is Rs. 17.42 crore (around $ 2.1 USD). Doctors confirm one dose of injection Zolgensma chemical name "Onasemnogene Abeparvovec-xioi" and continuous SMA support treatment would be needed to repair the damaged gene and halt deterioration of the nerve cell.

We want to give her a chance to not only survive, but also to live a full, happy, and long life. We hope that this will give a new life to our little baby.

It seems unaffordable for a family like ours. We require your assistance in order to save our child from the clutches of this disease. Your generosity is our last hope for giving Mishika a healthy and happy life.

We do not wish to lose our baby. Let not our little warrior feel unsupported. Your donations will help her receive the right kind of help she needs. Only you can help her now!

My family and I urge you with folded hands - please consider donating. In the last few months, my family hasn’t seen a single moment of joy, and we have only now been given a shimmer of hope. Please help us with all your might to help raise the amount.

Humbly,

Mudit Mohun( Father), Neha Saxena (Mother)

Note for donors:

For Donors outside India and USA (donation is possible in all currencies using credit/debit cards. And those who wish to do a bank transfer for large donations, following are the options):

1)
Beneficiary Name / Milaap Social Ventures USA
Account Number / 9800991814
Type of Account / Checking
Beneficiary Address / 5335 Montrose Drive,
Dallas, TX 75209
Bank name / Evolve Bank & Trust
ABA Routing Number / 084106768
Bank Address / 6070 Poplar Ave, Suite 200
Memphis, TN 38119

Please send an email to anoj@milaap.org and finance@milaap.org with the transfer details to receive acknowledgment. Acknowledgment will be issued within 1-2 working days.

2) For DAFs, Family Foundations and HNIs in the US
Donations above $1000 towards this initiative can be made through Milaap’s 501c3 partner in the US and will receive
 tax-exemption for US tax-residents.

Beneficiary Name/ ASSET India Foundation
Account Number 9800962772
Type of Account/ Checking
Beneficiary Address/ Asset India Foundation, 1041 West Thorn Street San Diego, CA 92103
ABA Routing Number/ 084106768
Bank Name/ Evolve Bank & Trust
Bank Address/ 6070 Poplar Ave, Suite 200 Memphis, TN 38119

Please send an email to anoj@milaap.org and finance@milaap.org with the transfer details to receive acknowledgment.  Acknowledgment will be issued within 1-2 working days.

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