Also, He Is Suffering From Hamamy Syndrome And It Is A Rarest Case In The World And He Is The 2Nd Baby In The World With This Syndrome. Other Concerns Like Developmental Delay Mainly In Language Field. Whole Exome Test Shows Irxs (+) Homozygous.
He Is Under Treatment In Narayana Hrudhayalaya Hospital At Bommasandra, Bangalore. He Is Undergoing Blood Transfusion Since He Is 3 Months Old Every Month And Now We Have Planned For Bone Marrow Transplant (BMT) At Narayana Hrudhayalaya, Bangalore.
Until Now, We've Spent About Rs. 9,00,000/- For His Treatment From Our Own Savings & Hand Loans. He Does Not Have Complete Hla Matched Sibling Donor. Fortunately, We've Found an Unrelated Donor For Him To Proceed with The BMT. Now, As Per the Doctor's Advice, We've Planned To Do a Bone Marrow Transplant In The Mid Of April 2021. The Cost For The Procedure Is Estimated At Rs. 33,80,000/-
During This Pandemic Situation, It Is Very Challenging For Us To Arrange Funds. Any Contribution Will Be Of Immense Help. It Is my Heartiest Request To All The Well Wishers To Pray And Help In The Medical Treatment, Even Every Donation Is Counted.