“It’s so painful to see that our daughter has to survive on tubes and medicines. Yogesh and I waited for 6 long years to hold our baby in our arms. Now that we have her, her misery kills us every day. I haven’t slept well for months now just because my baby keeps tossing and turning relentlessly the entire night,” Poonam, Divyanshi’s mother.

Being born with Down syndrome didn’t seem to be the only odd that Divyanshi had to fight

Poonam and Yogesh’s happiness knew no bounds when their prayers for their own child had finally been heard after 6 years. Although baby Divyanshi was born with down syndrome, they were prepared to fight all odds for their baby and considered her to be truly God's gift.

“At the seventh month of Poonam’s pregnancy, we got to know that our baby has a hole in the heart and it would close after she was born. But to add to our misery, when she was just 7-months-old we got to know it is worse. My baby has an atrial septal defect, a condition where there’s a hole in the wall that allows oxygen-rich-blood to leak into oxygen-poor-blood. Now she suffers from a cough and cold, and pneumonia very often.” Yogesh, Divyanshi’s father.

 Little girl is living on tubes and is in excruciating pain

Little Divyanshi was admitted to the hospital for almost 2 months because of pneumonia. After the discharge,  her parents thought that she would now be better. But just after a few days, she is again down with terrible fever and a cold. A heart surgery is the only way to save little Divyanshi.

“It’s so painful to see the baby who we brought to the world after such long wait, suffering so much. Without the tubes fit through her mouth, she can’t even feed or have her medicines. It’s difficult for us to accept this as our baby’s reality. I just want to relieve her from this pain forever.”

Having lost his job, lives have just become difficult for the family

Yogesh worked as a salesman in a private firm. For almost 2 months that he has not been able to go to work and is out every day in search of a new job. There’s a huge medical expense that the parents have to bear so that their little girl can live.

“We have already spent about Rs 2 lakhs on Divyanshi’s treatment. We have somehow managed to live by borrowing so far. My wife’s parents have lent us too much and even they are exhausted now. With no job now, things are getting way tougher for us. Now we don’t even have the money to afford the treatment my baby needs to survive.”

How you can help

Baby Divyanshi has a major heart problem which has put her at severe risk. The cost required for the life-saving heart surgery is Rs 4.7 lakh and her parents have no means left to save her.