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This is the story of our brave little warrior, Layam, a sweet and spirited 16-month-old boy who has been diagnosed with Spinal Muscular Atrophy (SMA) Type 2 — a rare, progressive disease that slowly robs children of their ability to move, eat, and eventually breathe.
Layam was born healthy and full of life. His smile lights up the room, and he has a spark that brings joy to everyone who meets him. But just a few months ago, our world turned upside down when we noticed he was missing key milestones—he wasn’t crawling or standing like other children his age. After countless tests and sleepless nights, we received the devastating diagnosis: SMA Type 2.
Without treatment, the condition worsens over time, leading to severe disability. But there is hope—Zolgensma, a revolutionary one-time therapy, can stop the progression of SMA and give Layam a real chance at life.
Here’s the urgent part: Zolgensma must be given before Layam turns 2 years old to be most effective—and he’s already 15 months. The therapy costs over 9 Crore, and every day we wait, we lose precious time. We are racing against the clock.
We are reaching out to you—friends, family, kind-hearted strangers—because we can’t do this alone. Your support can help us give Layam the chance to grow up, to run, to play, to live the life every child deserves.
Please consider donating and sharing Layam’s story. Every dollar, every share, every prayer brings us closer to our goal. Let’s rally together to give Layam a future full of hope and movement.
Donate. Share. Support. For Layam.
#FightForLayam #SaveLayam #SMAAwareness #Zolgensma
