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Hi,
We are raising funds for my daughter, Ananya Mohal. She is diagnosed with a genetic disorder named MPPH SYNDROME. There are few treatment option which we are seeking like stem cell treatment, gene therapy/editing, Antisense oligonucleotide (ASO) method. All of these treatments are very very expensive & one cannot afford them until there is big donation help/Sponsor/ any kind of help through your assistance! The cost of treatment of a patient with Neurological disorder amounts to approx. US$ 750,000 (INR 5,02,50,000) for the first year, and half of that every year afterward [38,39].Thus the high costs are a major setback to any healthcare system plus the poor validity of the clinical trials in showing efficacy and adverse effects do not give a definitive risk-benefit advantage. Hence, please help us out as she is still in her developmental stage and still stands a chance to lead a normal life provided she is treated timely. Eagerly looking forward for a hope! Our family is doing all it can to collect the total amount required for the treatment to pay for all the medical expenses.
As the amount required is huge, I request you to kindly contribute towards the treatment and help during this time of need. Each contribution is important!
Please help us raise this amount by clicking on the donate button and sharing this page with your friends and family.
We are grateful for your help and wishes.
Thank you.
We are raising funds for my daughter, Ananya Mohal. She is diagnosed with a genetic disorder named MPPH SYNDROME. There are few treatment option which we are seeking like stem cell treatment, gene therapy/editing, Antisense oligonucleotide (ASO) method. All of these treatments are very very expensive & one cannot afford them until there is big donation help/Sponsor/ any kind of help through your assistance! The cost of treatment of a patient with Neurological disorder amounts to approx. US$ 750,000 (INR 5,02,50,000) for the first year, and half of that every year afterward [38,39].Thus the high costs are a major setback to any healthcare system plus the poor validity of the clinical trials in showing efficacy and adverse effects do not give a definitive risk-benefit advantage. Hence, please help us out as she is still in her developmental stage and still stands a chance to lead a normal life provided she is treated timely. Eagerly looking forward for a hope! Our family is doing all it can to collect the total amount required for the treatment to pay for all the medical expenses.
As the amount required is huge, I request you to kindly contribute towards the treatment and help during this time of need. Each contribution is important!
Please help us raise this amount by clicking on the donate button and sharing this page with your friends and family.
We are grateful for your help and wishes.
Thank you.
