Baby Ananya needs your help to fight this disease. The only solution to this type of blood cancer (JMML with nf1) treatment is a Bone marrow transplant (BMT) with some no. of chemotherapy. For BMT, we require a 10/10 match stem cell donor, and for that, we need to find out the donor from the registry (from the stem cell registry). The complete process is very expensive. We are private employees and cannot effort that much amount.
We urge you to please help us to save our baby from this life-threatening disease. We and everyone know, how dangerous blood cancer is and blood cancer with this type (i.e., JMML) is very much painful to a baby.
Our daughter Ananya, diagnosed with JMML at an early age. The doctor suggested for chemo and BMT, but both the option was not feasible for her during that time, because she was too young.
Currently, her spleen is enlarged in a very high amount. also, few tumors started forming at the lower back part of the head, which is very painful for her, and due to this, she cries a lot (day and night). Also, her WBC count progressively increasing. Due to JMML with nf1, with an enlarged spleen, she is also having no Caffe spot in the whole body. Further, due to all this cause, she is not able to achieve many of her milestones.
Day by day, her condition is going into danger. We as Ananya's parents, want to give her a happy and healthy life.
Treatment Options in India
As of now blood cancer with type JMML and nf1 can only be treated by bone marrow transplant(BMT). For BMT, we need a stem cell donor from the stem cell registry (because the mother's stem cells are not a complete match, and the success rate is less). We request you all to please come forward to help us to fight this.