I am Ajith Kumar T, and I am raising funds for my daughter, Ameya Ajith.
My daughter has been diagnosed with Type 1 Mucopolysacchridosis(MPS), a rare genetic disorder which is progressive and life threatening. Please click the link to read further abut the disorder: https://checkrare.com/mucopolysaccharidosis-type-1-mps-1/
We have visited a number of hospitals including SAT, Trivandrum and CMC, Vellore, and consulted with many doctors, ever since her birth. And the only treatment they suggest is an immediate bone marrow transplant.
For the last three months, we have been running from pillar to post for bone marrow donors, and we did find one German donor. According to the doctors at CMC,Vellore, the entire procedure would sum up to over 35 Lakhs INR($ 50,350). Please see the medical reports attached for the details. I come from a poor background and cannot afford to raise such a lump sum.
We lost a son five years back to the same disorder. We have another elder son who is hail and healthy, by God's grace. However, it's heart-wrenching to see my whole family undergo this trauma. At the age of 1.5, when she should be walking, climbing and exploring the beautiful world around her, it's extremely saddening to see her crawl to move around. I'm determined to do everything I can to save my only daughter, at any cost.
I have already exhausted all of my funds for her earlier treatments. The only asset I now have is my house, which I also plan to sell to raise the treatment's funds.
I genuinely plead to all the kind and generous donors to help me and my family save our daughter, Ameya. I humbly request you to please help through donations, shares, and support campaigns.