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Hi all, am Siri, mother of Baby Advik. I am here to fundraise for my son who was diagnosed with a rare genetic disorder, Mucopolysaccharidosis type III (MPS III or Sanfilippo symdrome).
As a mother, I cried for giving birth and a new life to my son with joy but now am crying for his struggle for life. Each and every day passing is making his condition more worse with severe pain.
Recently we noticed that our son has breathing difficulty and some abnormalities with his physical conditions. After taking him to many hospitals we came to know that he was diagnosed with unanticipated condition. It is a fatal disorder with very poor prognosis and less life expectancy. Even though the chances of recovery is quiet low we are expecting our son to respond and react actively with the treatment.
There is no permanent treatment available for this disorder and only option we have bone marrow transplant and enzyme replacement as said by doctors. The cost of treatment is around 70 lakhs and we already spent our savings and more than 6 lakhs in diagnosing the condition.
Everyday my son is struggling for his life. Your help and support will give him a second chance of life. I request each and everyone to please support, share and donate for a life.
As a mother, I cried for giving birth and a new life to my son with joy but now am crying for his struggle for life. Each and every day passing is making his condition more worse with severe pain.
Recently we noticed that our son has breathing difficulty and some abnormalities with his physical conditions. After taking him to many hospitals we came to know that he was diagnosed with unanticipated condition. It is a fatal disorder with very poor prognosis and less life expectancy. Even though the chances of recovery is quiet low we are expecting our son to respond and react actively with the treatment.
There is no permanent treatment available for this disorder and only option we have bone marrow transplant and enzyme replacement as said by doctors. The cost of treatment is around 70 lakhs and we already spent our savings and more than 6 lakhs in diagnosing the condition.
Everyday my son is struggling for his life. Your help and support will give him a second chance of life. I request each and everyone to please support, share and donate for a life.
