My son Adhiroop Chinnasamy is 2 years old. He was diagnosed with an ultra-rare genetic disorder termed Aromatic l-Amino Acid Decarboxylase Deficiency (AADCd) short when he was 8 months. AADCd is a very rare disease in which less than 10 children are diagnosed in India so far. We have treated him in India but we can find that only the symptoms can be treated in India and that too to a certain extent.
My son is 2 years old is able to sit now with support. Though the symptoms can be treated, still the chance for fatality in my son is very high that too his chances of having a life span beyond 10 years are highly unlikely. Fortunately, we have received a communication from Texas Children's hospital that my son is enrolled for a gene therapy surgery in the same hospital in Houston, Texas.
The medical expenses are huge and we can't meet out the entire medical expenses to treat my son. It costs around Rs.35 lakhs in INR. This is from the bottom of the heart, I am requesting everyone to kindly donate as it will help my son to gain an entirely new life who is imprisoned his own body now.