Save Aayansh Life From SMA Type-1 Disease - 16 Cr For The Drug | Milaap
Save Aayansh Life From SMA Type-1 Disease - 16 Cr For The Drug
1%
Raised
Rs.500
of Rs.1,00,00,000
1 supporter
  • SK

    Created by

    Suman Kumar
  • AS

    This fundraiser will benefit

    Aayansh Singh

    from Patna, Bihar

80G tax benefits for INR donations

Story

The house is filled with cries or silence and we just want to bring our boy back. With only few months left we need you to hear our story and help us save the light of our lives- says Neha and Alok Kumar Singh, Aayansh’s parents.

Aayansh Singh, a 10 months old child is suffering from a rare SMA (Spinal Muscular Atrophy) Type-1 disease. In this disease, the body part gradually stops working and then child is not able to live more than two years. Something similar is going to happen to this kid.

The head of this child is not able to handle, the power of his arms and legs has ended. He has started having trouble in eating food. This child has become 10 months old but is unable to do anything yet; it is still like a newborn.

As of present day he has lost 90% of his neck control. Due to this deadly disease, now it has only a few months left. But if we all join hands, we can save this Aayansh's life.

Zolgensma injection is the only cure for this disease in the world and the cost of that injection is 16 crore rupees. It is one of the most expensive injections in the world. This injection has to be imported from America because the only company in the world makes this injection.

Earlier in India, two children had this disease, which has been successfully saved by injection. However, availing Zolgensma has proved to be a herculean task for a middle-class family like Aayansh’s parents.

This can be possible with our help and cooperation and Aayansh's life can be saved like the life of a child of Gujarat and Andhra Pradesh has been saved due to the help of the people there. The life of the Aayansh is now in the hands of all of us.

Try to help us as much as you can and try to share this post as much as possible.

Thanks in Advance!
Janjagran Charitable Society Team
www.jcsindia.org

Read More

Know a similar organisation in need of funds? Refer an NGO
support