Hi, my name is Wajid As many friends and family know my son Aahil Iyad was born with a rare genetic condition called Neurofibromatosis-Type-1 and as part of its characteristics he is now facing Bilateral Congenital pseudarthrosis of the tibia in both legs, a very rare condition that affects 1 in 10Lakh people. once a fracture has occurred its healing capacity is almost non-existent.
Unfortunately, when Aahil was 9 months old he fractured his left leg, ever since then Doctors have recommended to wear protective braces for both legs and is unable to walk as normal kids of his age do…although he is very afraid of Doctors we know he is in need of major surgery and hopes this surgery heals him.
Here in India we have consulted various Hospitals such Rainbow, Sunshine, Vijaya, NIMS, Ganga Hospital Coimbatore, CMC hospital in Vellore, BIRDS hospital Tirupathi, Mannheim Medical University Germany, Dr. med. Stefan Schmitz Clinic Ludwigshafen Germany and for majority of Doctors this condition was new and cannot help or guarantee his healing. I did a lot of research and joined a FB group where I found hope with Dr. Dror Paley, Paley Ortho and Spine Institute, Poland that has 100% success rate in healing Tibia and Fibula bones with X-Union technique. The insurance that my son is covered has denied treatment as it is of a congenital disorder. However even after treatment my son has to undergo surgery for every 4-5 years in order to replace the rod that would be inserted in his limb from Knee to foot. Unfortunately even the right leg is in pre-fracture stage and is also in need of immediate attention.
Also recently Aahil has been in so much pain with the bone and he needs these surgery ASAP , it’s impossible for us with only one working person in family and to even come up with any money in such short time ,that is why We are asking for help raising funds to cover for his surgery expenses.
Any donation that can be made is welcome and will be greatly appreciated it, it really means a lot to us ,thank you in advance and may God bless you all!!