Help Sidamma undergo Bone Marrow Transplant

5 year old Sidamma was to join school but just before the admission process, she fell sick. She started to become very tired and complained of burning pain in her eyes, stomach and feet. Her parents took her to the local hospital in the district, hwoever, the doctor was unable to identify what troubled Sidamma. It was later identified as Griscelli's Syndrome - a rare, immunodeficiency illness that needed immediate treatment to save her life.

A Rare Disease - Griscelli's Syndrome
Her father Sanekappa did his best and took her to several doctor, but no one could diagnose the problem with Sidamma's health. He was shattered.

Finally a doctor he consulted immediately saw that this was a rare disease and that the girl needed expert opinion. He referred them to Narayana Hrudayalaya, Bangalore. Sidamma was diagnosed with Griscelli's Syndrome - a blood cancer. It is a rare, newly discovered immunodeficiency illness. Children will this disease usually do not survive their childhood unless they receive a bone-marrow transplant. For Sidamma, time is running out.

Fortunately, for Sidamma, her little sister is a 100% match and will be donating stem cells to Sidamma. But the family needs Rs 12 lakhs for the procedure. It is a sum that will be impossible for Sanekappa to raise. The family needs your help to raise funds for the little girl's Bone Marrow treatment.

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30th November 2016
Dear All,

Currently Sidamma is slowly progressing. She requires frequent blood transfusions as her total white blood cell count has drastically fallen to 1800/mcl and platelets to 76000/mcl. As Griscelli syndrome is caused by a genetic defect that lowers the blood platelet level, enlargement of the liver and spleen and also decreases the immune deficiency drastically. This could result in the death of the child if not treated early.  The only hope is by bone marrow or stem cell transplantation.

She needs to undergo allogeneic stem cell transplantation early and fairly quickly. The only ray of hope is an early treatment. Please do share Sidamma’s story and help her fight this battle.

We thank each and every supporter for their support and blessings!


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raised of Rs.1,200,000 goal

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Beneficiary: Mazumdar Shaw M... info_outline
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Supporters (30)

Mahalakshmi donated Rs.1,000

Get well soon

DD donated $30
Mahuya donated $25
Anonymous donated $7.57
Neeraj donated Rs.5,000
Anonymous donated Rs.500