Help Sidamma undergo Bone Marrow Transplant

Story
Updates (3)

5 year old Sidamma was to join school but just before the admission process, she fell sick. She started to become very tired and complained of burning pain in her eyes, stomach and feet. Her parents took her to the local hospital in the district, hwoever, the doctor was unable to identify what troubled Sidamma. It was later identified as Griscelli's Syndrome - a rare, immunodeficiency illness that needed immediate treatment to save her life.

A Rare Disease - Griscelli's Syndrome
Her father Sanekappa did his best and took her to several doctor, but no one could diagnose the problem with Sidamma's health. He was shattered.

Finally a doctor he consulted immediately saw that this was a rare disease and that the girl needed expert opinion. He referred them to Narayana Hrudayalaya, Bangalore. Sidamma was diagnosed with Griscelli's Syndrome. It is a rare, newly discovered immunodeficiency illness. Children will this disease usually do not survive their childhood unless they receive a bone-marrow transplant. For Sidamma, time is running out.

Fortunately, for Sidamma, her little sister is a 100% match and will be donating stem cells to Sidamma. But the family needs Rs 12 lakhs for the procedure. It is a sum that will be impossible for Sanekappa to raise. The family needs your help to raise funds for the little girl's Bone Marrow treatment.

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18th May 2018

Dear Supporters,
Thank you all for your support.

Sidamma's bone marrow transplant was successful and she's at home with her parents. She's living a normal life of a kid and her parents are extremely to finally see her going to school.

This couldn't have been possible without the support of each one of you.
Thank you so much for giving a new life to Sidamma!

God bless you all.

18th January 2017

Dear supporters,

Here is an update on Sidamma’s treatment.

Thank you for coming forward to help this little girl.

The slow recovery of the child has been a real worry for her parents. The low WBC count has affected her immune system and her hair and eyelashes have started to slowly turn white. However, finally with your support and contribution, she will be undergoing Bone Marrow Transplant (BMT) which is expected to begin on 19th January 2017.

Her parents are happy and thanked each and every supporter without whom this would not have been possible.

Team Milaap

30th November 2016

Dear All,

Currently Sidamma is slowly progressing. She requires frequent blood transfusions as her total white blood cell count has drastically fallen to 1800/mcl and platelets to 76000/mcl. As Griscelli syndrome is caused by a genetic defect that lowers the blood platelet level, enlargement of the liver and spleen and also decreases the immune deficiency drastically. This could result in the death of the child if not treated early. The only hope is by bone marrow or stem cell transplantation.

She needs to undergo allogeneic stem cell transplantation early and fairly quickly. The only ray of hope is an early treatment. Please do share Sidamma’s story and help her fight this battle.

We thank each and every supporter for their support and blessings!

Best,
Dr.Nataraj