HELP SAVING RATAN NIMIISH WHO GOING THRU BONE MARROW TRANSPLANT | Milaap
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HELP SAVING RATAN NIMIISH WHO GOING THRU BONE MARROW TRANSPLANT

Hello,
I am Kavitha from Chennai, India. My sister's (Jothi) son - Ratan Nimiish is just 7 months old who is suffering from a very rare disease SCID - Severe Combined Immuno Defeciency by birth. He doesnt have immunity by birth where any small viral/bacterial/fungal infections would become a fatal disease for him. Right now he has got TB and his lungs got infected. This can also spread to other body parts. Bone Marrow Transplant is the only treatment for this disease which would cost around 25 - 30 lacs (Operation + post operation treatment costs). Both the parents family are middle class families and couldnt afford the operation cost.
The whole family is emotionally down. His survival is the only hope for both the families and their future.
He is currently discharged from PIMS, Pondicherry and we are taking him to Aster CMI Hospital, Bangalore for proceeding with his operation.
Appreciate any financial assistance to continue his treatment.
Discharge Summary from CMC, Vellore
Discharge Summary from CMC, Vellore
Discharge Summary from PIMS, Pondicherry
Discharge Summary from PIMS, Pondicherry
Latest discharge summary from PIMS
Latest discharge summary from PIMS
Estimation letter for the transplant
Estimation letter for the transplant
Initial advance paid for the transplant
Initial advance paid for the transplant
Ask for an update
12th January 2020
Dear Supporters,

Thanks to all of you for your support. It's been a year already. Last year in January, Ratan was admitted in Bangalore and underwent Bone Marrow transplant. Now he is out of danger but still under some medications. This wouldn't have been possible without your support.

At this moment, we would also like to share you this. Ratan is now brought up by single mother. Ratan's parents separated even before he was born and his mother was handling it alone all along.

Being single mother the whole journey wouldn't have been easy for her  without all your support. Special thanks to all of you from heart.

Hope he recovers completely soon.

Thanks,
Kavita
Dear Supporters,

Thanks to all of you for your support. It's been a year already. Last year in January, Ratan was admitted in Bangalore and underwent Bone Marrow transplant. Now he is out of danger but still under some medications. This wouldn't have been possible without your support.

At this moment, we would also like to share you this. Ratan is now brought up by single mother. Ratan's parents separated even before he was born and his mother was handling it alone all along.

Being single mother the whole journey wouldn't have been easy for her  without all your support. Special thanks to all of you from heart.

Hope he recovers completely soon.

Thanks,
Kavita
10th December 2019
Dear Supporters,

Here is the latest update on Ratan's Treatment.

He was getting better and his medications were getting reduced gradually until last month where there was some drop in his Chimerism report. So as suggested by Doctor, DLI was given and he was admitted to hospital and under observation for a day. Then he was normal for few days.

Since 3 weeks he was having continuous fever. Inspite of given medications his fever was not getting under control. He also had wheezing and inhalers were given.

Last Saturday on Nov 30th, he was again admitted in Hospital for high fever of 104F. But all the reports were good and couldn't diagnose the root cause for his fever. After continuous monitoring and medications his fever was got under control and he got discharged on Dec 9th. He is getting better now.

Hope he recovers completely with all your support and blessings.
Dear Supporters,

Here is the latest update on Ratan's Treatment.

He was getting better and his medications were getting reduced gradually until last month where there was some drop in his Chimerism report. So as suggested by Doctor, DLI was given and he was admitted to hospital and under observation for a day. Then he was normal for few days.

Since 3 weeks he was having continuous fever. Inspite of given medications his fever was not getting under control. He also had wheezing and inhalers were given.

Last Saturday on Nov 30th, he was again admitted in Hospital for high fever of 104F. But all the reports were good and couldn't diagnose the root cause for his fever. After continuous monitoring and medications his fever was got under control and he got discharged on Dec 9th. He is getting better now.

Hope he recovers completely with all your support and blessings.
23rd September 2019
Hi All,

Thank you very much for your support.

Ratan is much better now. His TB medications have been stopped. His cell counts are improving. Still he is under monthly observations with few medications continued. As side effects of the medicines, he has got abnormal growth of hair in his body due to which he has got skin infections now. We are also treating this infections now.

Hope he recovers completely.
Hi All,

Thank you very much for your support.

Ratan is much better now. His TB medications have been stopped. His cell counts are improving. Still he is under monthly observations with few medications continued. As side effects of the medicines, he has got abnormal growth of hair in his body due to which he has got skin infections now. We are also treating this infections now.

Hope he recovers completely.
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Rs.0 raised

Goal: Rs.3,000,000

Beneficiary: Ratan Nimiish info_outline