Help Me Fight Lung cancer with mutations. | Milaap

Help Me Fight Lung cancer with mutations.

Hello everyone, 

I am prakash reddy, 30 years old living in Hyderabad with the love of my life since we got married in April 2016. 

In September 2017, I started having cough, chest pain, shortness of breath and weight loss. After going through multiple courses of antibiotics, antifungal and anti tuberculous treatment; in January/February of 2018, I had a biopsy and a PET scan to hear the dreaded diagnosis of stage IV lung cancer.  I was diagnosed with NSCLC ( non small cell lung cancer) with ALK (Anaplastic lymphoma kinase) and NRAS mutations. 

I was honestly terrified to have this diagnosis especially when I never smoked. I lead a healthy lifestyle and done everything right. I had no family members with cancer history. I was really worried about my newly wed wife.

Soon after diagnosis, I had 4 cycles of chemotherapy for NSCLC. After which I am prescribed SPEXIB(CERITINIB) 450mg capsule daily for the ALK mutation. I have been on Spexib since May 2018. Since the treatment, I have made a quite some progress. Repeat PET scan showed improvement as well, doctors are happy with the progress. Doctors have recommended to continue the medication for 30 months. 

I was working as a dot net developer for the small software company until 2017 December, when I had to quit the job after running out of sick leaves due worsening symptoms. Insurance covered for all the tests and antibiotics up until I had to quit. Since than, I have used up all my savings and paid some bills with the help of family and friends. My wife is currently working as a private employee making 10000 RS (140 USD) per month which barely gets us through the months for basic needs. 

The medication is very expensive costing me 97,092 RS ( Ninety Seven Thousand and ninety two rupees) for 150 capsules (of 150 mg strength) which last me for 50 days. Currently, I am out of all my options. I am seeking your prayers for my recovery and any assistance you can provide financially that will go towards paying for my medical treatment so I can fight this deadly cancer and live a long healthy life.

I am fortunate to be under the care of Dr. P.S Dattatreya, my medical oncologist at Omega hospitals who has been very vigilant about my progress. I am very thankful to my uncle Dr. Avula Ramchander who has helped me medically, financially, mentally to fight this deadly disease. 
ALK and lung cancer report complete gene report
ALK and lung cancer report complete gene report
Medicine Prescription
Medicine Prescription
My Pet SCan Page 1
My Pet SCan Page 1
Pet scan page 2
Pet scan page 2
Pet scan page 3
Pet scan page 3
Pet scan page 4
Pet scan page 4
Pet scan page 5
Pet scan page 5
Pet scan page 6
Pet scan page 6
Histopathology Report
Histopathology Report
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19th February 2020
Dear Donors,

Thank you all for the support. I am doing well since the last time I emailed. I was placed on bed rest initially for the hip bone necrosis, But since then it has improved and the orthopedic doctor has cleared me for full weight bearing on both legs now. The PET-CT scan was stable with consolidation on the lung with no uptake. Oncologist has-recommending to continue SPEXIB.

Again, Thank you for your love and support. Kindly keep me in your prayers and share the link with your friends and family.
Dear Donors,

Thank you all for the support. I am doing well since the last time I emailed. I was placed on bed rest initially for the hip bone necrosis, But since then it has improved and the orthopedic doctor has cleared me for full weight bearing on both legs now. The PET-CT scan was stable with consolidation on the lung with no uptake. Oncologist has-recommending to continue SPEXIB.

Again, Thank you for your love and support. Kindly keep me in your prayers and share the link with your friends and family.
13th November 2019
Dear Donors,

Thank you all for the support. I am doing well since the last time I emailed. Like I mentioned last time the bone biopsy was negative for spread by gods grace. A recent Chest X Ray showed improvement. My oncologist has recommended to get an Ultrasound of neck, whole abdomen and a 2d echo. Oncologist has-recommending to continue SPEXIB. My next scheduled PET scan is in January

Again, Thank you for your love and support and please keep sharing the link with your friends as well so that i can continue the treatment.
Dear Donors,

Thank you all for the support. I am doing well since the last time I emailed. Like I mentioned last time the bone biopsy was negative for spread by gods grace. A recent Chest X Ray showed improvement. My oncologist has recommended to get an Ultrasound of neck, whole abdomen and a 2d echo. Oncologist has-recommending to continue SPEXIB. My next scheduled PET scan is in January

Again, Thank you for your love and support and please keep sharing the link with your friends as well so that i can continue the treatment.
23rd August 2019
Dear Donors,

Thank you for all the support. I am doing well overall with some setbacks. The PET scan was better, but new findings of avascular necrosis of both the hips (left more than the right). Doctors are not sure why i developed it and they dont believe is due to SPEXIB. Doctors are recommending to continue SPEXIB. Meanwhile, I had decompression of the hips, thankfully the bone biopsy was negative for any spread.

Again, Thank you for your love and support and please keep sharing the link with your friends as well so that i can continue the treatment.
Dear Donors,

Thank you for all the support. I am doing well overall with some setbacks. The PET scan was better, but new findings of avascular necrosis of both the hips (left more than the right). Doctors are not sure why i developed it and they dont believe is due to SPEXIB. Doctors are recommending to continue SPEXIB. Meanwhile, I had decompression of the hips, thankfully the bone biopsy was negative for any spread.

Again, Thank you for your love and support and please keep sharing the link with your friends as well so that i can continue the treatment.
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Rs.820,928 raised

Goal: Rs.1,000,000

Beneficiary: K prakash reddy info_outline

Supporters (247)

A
ANNALDASSAIPRASAD donated Rs.10,000
PR
Padmanabha donated $430

You will beat it 👍

Kd
Kanaka donated $1,000

God bless you

A
ANNALDASSAIPRASAD donated Rs.10,000
AS
Annaldas donated Rs.10,000
MI
Milaap Impact Partner donated Rs.310

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