Neha Suffers From Severe Pelvic Dysfunction & Unbearable Pubic Pain

Story
Updates (10)

My spouse, Neha, is suffering from multiple medical ailments from last 3.9 years and complete bed ridden for last 1.5 years.

Clinical Diagnosis

Recurrent & Constant UTI (urinary tract infection) since last 03 years;
Ostitis pubis (abnormal bone growth in pubic sacrum);
Coccydynia 3rd Stage (90° internal angulation of Coccyx or tail bone);
Acute PFD (pelvic floor dysfunction)
Fibromyalgia (Severe Muscle Knots & Trigger Points in Whole Pelvic)
Chemical Intolerance (Cannot be given all prescribed medicines)

Symptoms

Completely bed-ridden since 1.5 yrs.,
Significant very severe pain, 24x7, near urinary bladder, uterus, pelvic region;
Ultra-high urination frequency (~ every 20 mins.) 120+ times in 24 hours;
Severe Hesitancy in voiding urine
Near-nil mobility due acute inflammation across bladder, uterus, multiple joints, muscles and nerves;
Nearly complete lack of sustained sleep (due to constant pain). At the most she can sleep for 1 hour continuously in night

Last 3 years of treatment for my spouse has been very demanding in terms of financials, physical & emotionally. I am currently in lot of debts owing to the medical expenditure and not able to find financial help for further treatment. I have used all my savings, Provident Funds, & finances from family, friends, other sources till now to cover for medical expenses. Now I am in need of financial support for further treatment of my spouse which is expected to go on for another 6-8 months as recovery is slow owing to the nature of the medical ailments.

Despite having a respectable job with a multinational, yet, due to the scale, frequency, sheer duration and cyclical repetition of the healthcare expenses involved, we find ourselves near completely drained, having used up our savings, provident funds, credit-lines via short-term bank loans/credit card.

We are in acute shortfall of INR 30 Lacs (viz., INR 03 million) to cover Neha’s treatment expenses expected to continue for another 06 – 08 months as per the highly experienced doctors attending to her – recovery is slow due to the multiplicity of the health issues but doctors have assured of full recovery in 07-08 months.

Our insurance healthcare covers is completely unusable as Neha cannot be admitted in hospitals due to her acute low immunity level resulting inclusively, from very long administration of continuous antibiotics. As per the expert doctors treating her, she has an extremely high probability of acquiring HAI’s (hospital acquired infections) if admitted.

MEDICAL EXPENSES FOR 06-08 MONTHS OF TREATMENT ARE AS FOLLOWS :

At-home Physiotherapy for PFD @ INR **1500/- per day. (required for min. 07 months. Offsite therapy near impossible due to extreme pain due to PFD;
At-home Dry Needling therapy @ INR **2,500/- per session per week
Hyper Baric Oxygen Therapy (HBOT) 60 sessions @ INR **5,500/- per session;
Continuous Urine Culture each week along with antibiotics for 01 month (till culture report is gram negative) INR **1,500/- per culture text (so, per month, ~ INR **6,000/-);
Chiropractor sessions for sacrum joints and lower spine and for immunity augmentation @ INR **1,250 per session (x 60 sessions) = INR **75,000/- excluding onsite lodging expenses for 02 months;
Online consultation charges with global expert Dr. Nicole Cozean (US based Worlds Best PFD Specialist) and follows ups approx. INR **200,000/- (deeply discounted at her discretion and goodwill for which we are very grateful);
Misc. consulting Doctors’ consultation fees, diagnostics, allopathic drugs, etc. ~ INR **450,000/-
Homeopathic drugs (Reckeweg® R1, R31, R5, R18 & Adel Akutur, Proscent, Upelva & Apo-Infekt): ~ INR **100,000/-
Laser Machine To be purchased for Laser Therapy at home. BTL-HI-LASER CAT4 BTL 6000 12W costing 12.5 Lacs INR

______________________________________
Total Expected Expenses for next 06 – 08 months : approx. INR 30 Lacs / viz., approx.. INR 03 million.

To add to our woes, sustained physical, financial and mental stress managing my wife’s treatment, our son, my office & our home affairs all by myself and that too, since so long, has taken a very significant toll on my own health – historical ailments of hypertension, kidney stone and thyroid imbalances have shot up and I am also suffering badly from a knee ligament tear, a.k.a. ACL tear and meniscus tear in both my knees.

Long years of acute suffering, enormous stress on overall environment and tremendous strain on resources has been affecting Neha psychologically and almost scarring her… Her emotional pain due to her rather mindful guilt of neglecting our dear son Yashmit is driving her increasingly off late towards giving up all hope. Tragically, I myself is leaving hope as I do not have funds to take care of her medical treatments.
In sheer desperation, I am reaching out to you all.

PLEASE, PLEASE, PLEASE RENDER ANY FINANCIAL ASSISTANCE FEASIBLE TO THE BEST OF YOUR ABILITIES SO THAT AT LEAST MY WIFE’S LIFE AND OUR DEAR SON YASHMIT CAN HOPE FOR A FUTURE TOGETHER.

Below are all the doctors prescriptions and case study of Neha. Please support to the best of your capabilities.

For your invaluable contribution, I and Yashmit promise to plant a sapling at suitable locations for every donation made with your (donor’s) personal details, as maybe desired – at this juncture, we are able to offer alongside, only our heartfelt prayers for you.

Best Regards

Rahul & Neha

+91-888-401-3335

Details for direct bank transfer / UPI

UPI: givetoneha@yesbankltd (Copy to clipboard)

Account number: 8080811041226
Account name: Neha Arora
IFSC code: YESB0CMSNOC

Click here to read the instructions before you make a bank transfer.

Neha Arora - Current Status - Urologist - May 2018

Neha Arora - Current Status - Physiotherapist - May 2018

Neha Arora - Current Status - Physiotherapist - May 2018 (2)

Details for direct bank transfer / UPI

UPI: givetoneha@yesbankltd (Copy to clipboard)

Account number: 8080811041226
Account name: Neha Arora
IFSC code: YESB0CMSNOC

Click here to read the instructions before you make a bank transfer.

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29th March 2019

Dear Supporters.

Neha underwent the rare Pelvic Floor Surgery in February. This was the 1st surgery amongst the list of treatments / surgeries planned for Neha.

Please continue to pray for her and support her. A small contribution goes a big way to plan her future surgeries.

Treatments Plan for Neha:
• [DONE] Pelvic Floor Surgery to Relax the whole pelvic floor.
• [Due in April] Laparoscopy for Endometriosis.
• [Due in April] Spine Surgery for L5S1 Nerve Root Compression & disc bulge
• Continuous Rehabilitation Plan at home by Physiotherapist for 4 - 5 months after surgery
• 45 Sessions of Hyper Baric Oxygen Therapy for giving strength to her body cells after 2 years of continuous antibiotics & restoring her immunity levels.
• Continuous supervision of a Nutritionist for her dietary plans for 4-5 months.
• Continuous Bed Care Assistant to take care of the patient with her daily routines considering she is bed ridden.

Best Regards
Rahul

8th February 2019

Dear Friends,

Warm Greetings.

I, on behalf of Neha, wish to express my sincere gratitude for your valuable concern extended to us. With the meaningful contribution and support of many friends like you, we have been able to continue the treatments of Neha.

Considering the present set of challenges we are facing in funding our programs, I am requesting you to donate to show your kind gesture towards Neha. I hope you would continue to show your love, care and support for her and help us to continue her treatments.

To bring Neha out of this chronic pelvic pain, the 1st step is to relax the pelvic floor muscle. There are very few doctors in the world who can perform this surgery. Until December we were unable to locate any doctor in India who could do that and to bring a doctor from US to India to do that was costing almost Rs. 85 Lacs which was not possible for us to bear.

By God’s grace, we were able to find a Government Doctor Dr. Kiran Ashok in Bangalore who is skilled, competent enough to do this surgery. He is the only doctor in India who can do this surgery. Neha will be operated for Pelvic Floor by 2nd week of February by Dr. Kiran Ashok. Post this she will be having a surgery for Endometriosis. Combined with these 2 surgeries Neha should be better by 70%. Once her pain level comes down & urinary infection stops, then we will have to wait for improvement in Urinary Bladder which is very much reduced in size with thickened walls. If the bladder does not relaxes on its own then she will be having surgeries of Bladder Insitillation to relax the bladder. After then she will be operated for Spine as she is having L5S1 disc bulge with Nerve Root Compression.

Major recovery is expected after first 2 surgeries. Total time more required for her complete recovery is dependent on how her body reacts to these surgeries.. But doctors are estimating around 3-4 months.

Kindly consider your valuable contribution.

Regards
Rahul n Neha.

24th January 2019

Dear Supporters,

The doctor who has to do the surgery for Neha just called and informed that there has been an emergency at his home and he will not be able to perform the surgery today.

He will confirm later when he will do the surgery for Neha. I will keep you updated.

Regards
Rahul.