Neha Suffers From Severe Pelvic Dysfunction & Unbearable Pubic Pain

Story
Updates (4)

My name is Rahul Saxena and My spouse, Neha, is suffering from multiple medical ailments from last 3.5 years and complete bed ridden for last 1.5 years.

Clinical Diagnosis

Recurrent & Constant UTI (urinary tract infection) since last 03 years;
Ostitis pubis (abnormal bone growth in pubic sacrum);
Coccydynia 3rd Stage (90° internal angulation of Coccyx or tail bone);
Acute PFD (pelvic floor dysfunction)
Fibromyalgia (Severe Muscle Knots & Trigger Points in Whole Pelvic)
Chemical Intolerance (Cannot be given all prescribed medicines)

Symptoms

Completely bed-ridden since 1.5 yrs.,
Significant very severe pain, 24x7, near urinary bladder, uterus, pelvic region;
Ultra-high urination frequency (~ every 20 mins.) 120+ times in 24 hours;
Severe Hesitancy in voiding urine
Near-nil mobility due acute inflammation across bladder, uterus, multiple joints, muscles and nerves;
Nearly complete lack of sustained sleep (due to constant pain). At the most she can sleep for 1 hour continuously in night

Last 3 years of treatment for my spouse has been very demanding in terms of financials, physical & emotionally. I am currently in lot of debts owing to the medical expenditure and not able to find financial help for further treatment. I have used all my savings, Provident Funds, & finances from family, friends, other sources till now to cover for medical expenses. Now I am in need of financial support for further treatment of my spouse which is expected to go on for another 6-8 months as recovery is slow owing to the nature of the medical ailments.

Despite having a respectable job with a multinational, yet, due to the scale, frequency, sheer duration and cyclical repetition of the healthcare expenses involved, we find ourselves near completely drained, having used up our savings, provident funds, credit-lines via short-term bank loans/credit card.

We are in acute shortfall of INR 30 Lacs (viz., INR 03 million) to cover Neha’s treatment expenses expected to continue for another 06 – 08 months as per the highly experienced doctors attending to her – recovery is slow due to the multiplicity of the health issues but doctors have assured of full recovery in 07-08 months.

Our insurance healthcare covers is completely unusable as Neha cannot be admitted in hospitals due to her acute low immunity level resulting inclusively, from very long administration of continuous antibiotics. As per the expert doctors treating her, she has an extremely high probability of acquiring HAI’s (hospital acquired infections) if admitted.

MEDICAL EXPENSES FOR 06-08 MONTHS OF TREATMENT ARE AS FOLLOWS :

At-home Physiotherapy for PFD @ INR **1500/- per day. (required for min. 07 months. Offsite therapy near impossible due to extreme pain due to PFD;
At-home Dry Needling therapy @ INR **2,500/- per session per week
Hyper Baric Oxygen Therapy (HBOT) 60 sessions @ INR **5,500/- per session;
Continuous Urine Culture each week along with antibiotics for 01 month (till culture report is gram negative) INR **1,500/- per culture text (so, per month, ~ INR **6,000/-);
Chiropractor sessions for sacrum joints and lower spine and for immunity augmentation @ INR **1,250 per session (x 60 sessions) = INR **75,000/- excluding onsite lodging expenses for 02 months;
Online consultation charges with global expert Dr. Nicole Cozean (US based Worlds Best PFD Specialist) and follows ups approx. INR **200,000/- (deeply discounted at her discretion and goodwill for which we are very grateful);
Misc. consulting Doctors’ consultation fees, diagnostics, allopathic drugs, etc. ~ INR **450,000/-
Homeopathic drugs (Reckeweg® R1, R31, R5, R18 & Adel Akutur, Proscent, Upelva & Apo-Infekt): ~ INR **100,000/-
Laser Machine To be purchased for Laser Therapy at home. BTL-HI-LASER CAT4 BTL 6000 12W costing 12.5 Lacs INR

______________________________________
Total Expected Expenses for next 06 – 08 months : approx. INR 30 Lacs / viz., approx.. INR 03 million.

To add to our woes, sustained physical, financial and mental stress managing my wife’s treatment, our son, my office & our home affairs all by myself and that too, since so long, has taken a very significant toll on my own health – historical ailments of hypertension, kidney stone and thyroid imbalances have shot up and I am also suffering badly from a knee ligament tear, a.k.a. ACL tear and meniscus tear in both my knees.

Long years of acute suffering, enormous stress on overall environment and tremendous strain on resources has been affecting Neha psychologically and almost scarring her… Her emotional pain due to her rather mindful guilt of neglecting our dear son Yashmit is driving her increasingly off late towards giving up all hope. Tragically, I myself is leaving hope as I do not have funds to take care of her medical treatments.
In sheer desperation, I am reaching out to you all.

PLEASE, PLEASE, PLEASE RENDER ANY FINANCIAL ASSISTANCE FEASIBLE TO THE BEST OF YOUR ABILITIES SO THAT AT LEAST MY WIFE’S LIFE AND OUR DEAR SON YASHMIT CAN HOPE FOR A FUTURE TOGETHER.

Below are all the doctors prescriptions and case study of Neha. Please support to the best of your capabilities.

For your invaluable contribution, I and Yashmit promise to plant a sapling at suitable locations for every donation made with your (donor’s) personal details, as maybe desired – at this juncture, we are able to offer alongside, only our heartfelt prayers for you.

Best Regards

Rahul & Neha

+91-888-401-3335

You can also do a bank transfer to the below mentioned account setup for this fundraising campaign:

UPI: givetoneha@yesbankltd (Copy to clipboard)

Account number: 8080811041226
Account name: Neha Arora
IFSC code: YESB0CMSNOC

Click here to read the instructions before you make a bank transfer.

Neha Arora - Current Status - Physiotherapist - May 2018 (2)

Neha Arora - Current Status - Urologist - May 2018

Neha Arora - Current Status - Physiotherapist - May 2018

You can also do a bank transfer to the below mentioned account setup for this fundraising campaign:

UPI: givetoneha@yesbankltd (Copy to clipboard)

Account number: 8080811041226
Account name: Neha Arora
IFSC code: YESB0CMSNOC

Click here to read the instructions before you make a bank transfer.

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6th October 2018

Dear Well Wisher Of Neha,

My sincere thanks to all of you for your support until now. Because of your blessings & wishes Neha is recovering. However the progress is slow.

To be more precise, since all the issues are related to Pelvic area, during monthly cycle, all her symptoms are aggravated 10 times. We are consulting a very senior Gynecologist in columbia asia for the same. Along with her the team of doctors (Urologist, Physiotherapist, Rheumatologist, Neuro Surgeon, Pain specialist, Nutritionist) are working towards her recovery. Treatments are being provided at home.

We are still finding ways to finance a Laser Machine which in itself is around 10 Lacs. And not to mention all the other expenses we are incurring for home treatment.

I will be so thankful to you if in any way you can support further in Neha's recovery. Neha and I still need your help.

Please continue to share further this link among your groups & friends to generate support for Neha.

We will be truly indebted to you.

Regards.
Rahul & Neha

3rd September 2018

Dear Well Wisher Of Neha,

Once again, thank you from the bottom of our hearts for your good wishes, prayers and help in extremely difficult circumstances.

A very recent diagnosis (under the care of renowned rheumatologist, Dr. Sharat Kumar), of _Fibromyalgia_ , in addition to _acute chemical intolerance_, has raised, the most critical of funding needs - so much so, that the otherwise very important laser treatment had to be postponed indefinitely. It would suffice to state that till date, 35% of the required treatment expenses have been met via gracious contributions like yours.

*A lot more therefore, is very badly needed... We most humbly request for whatever best that is feasible for you.*

Further, any efforts that you can please make to spread our petition amongst your network would elicit our greatest gratitude.

Thank you.

Warm Regards
*Rahul Saxena*
(husband of Neha Arora Saxena)

3rd August 2018

Friends,

Your generosity and support has truely been a God's gift for us. I can never thank you all enough for ur prayers, wishes, n financial support and for sure you all will be in our prayers.

As of now Nehas treatment is continuing. We have connected with the worlds best physio Dr. Nicole Cozean and She is reviewing her case along with her other doctors - Urologist/Neuro Surgeon/Ortho/Rheumatologist/&Physician to analyse what else we can do to bring quick relief to Neha. Meanwhile we are still struggling to get all the funds for buying some equipments required for Neha's treatment (details on Milaap page)

Many of you have already supported us with generous contributions however We still request you to please share further to your contacts with your recommendation n authenticity of this campaign.

We still need your support.

Neha needs all the prayers and financial assistance she can get. We would be utmost grateful to all.

MILAAP NGO link to view her case and to make your invaluable contributions is below

https://milaap.org/fundraisers/nehaarora

Regards,
Rahul Saxena