Neha Suffers From Intersititial Cystitis - PFD & Unbearable | Milaap
Neha Suffers From Intersititial Cystitis - PFD & Unbearable Pubic Pain
  • RAHUL

    Created by

    RAHUL NEHA
  • NA

    This fundraiser will benefit

    Neha Arora

    from Bangalore, Karnataka

My spouse, Neha, is suffering from multiple medical ailments from last 7 years and complete bed ridden for last 4 years. Doctors have assured 100% recovery. Her illness taken together is a rare complex medical situation which Doctors in India don't have hands on experience and the symptoms make every day of the patient unbearable and miserable. 

Many Indian Women Suffer from Pelvic Pain from PFD (Pelvic Floor Dysfunction) and cUTI. Her recovery will be a case study for treatment of Lakhs of women sufferers not only in India but around the globe. HELP - DONATE 

  •     Embedded UTI (Urinary Bladder infection) since last 6 years)(Rarely treatable in India)
    •     Interstitial Cystitis – Painful Bladder Disease (Rarely treatable in India)
    •     Ostitis pubis (abnormal bone growth in pubic sacrum);
    •     Coccydynia 3rd Stage (90° internal angulation of Coccyx or tail bone);
    •     Acute PFD (pelvic floor dysfunction) - Rarely Treatable in India
    •     Fibromyalgia (Severe Muscle Knots & Trigger Points in Whole Pelvic)
    •     Chemical Intolerance (Cannot be given all prescribed medicines)
Symptoms
  • Completely bed-ridden since 4 yrs., 
  • Significant very severe pain, 24x7, near urinary bladder, uterus, pelvic region; 
  • Ultra-high urination frequency (~ every 20 mins.) 120+ times in 24 hours;
  • Severe Hesitancy in voiding urine
  • Near-nil mobility due acute inflammation across bladder, uterus, multiple joints, muscles and nerves;
  • Nearly complete lack of sustained sleep (due to constant pain). At the most she can sleep for 1 hour continuously in night
 
Last 6 years of treatment for my spouse has been very demanding in terms of financials, physical & emotionally. I am currently in lot of debts owing to the medical expenditure and not able to find financial help for further treatment. I have used all my savings, Provident Funds, & finances from family, friends, other sources till now to cover for medical expenses. Now I am in need of financial support for further treatment of my spouse which is expected to go on for another 6-8 months as recovery is slow owing to the nature of the medical ailments.

She is under treatment of Dr. Steven Bundrick from Los Angeles USA & Harley Street London along with Indian Team of Doctors. International diagnosis and consultation are 250 ~ 400 USD per consultation and we have to go on for consultations every week.

Despite having a respectable job with a multinational, yet, due to the scale, frequency, sheer duration and cyclical repetition of the healthcare expenses involved, we find ourselves near completely drained, having used up our savings, provident funds, credit-lines via short-term bank loans/credit card.

We are in acute shortfall of INR 50 Lacs (viz., INR 05 million) to cover Neha’s treatment expenses expected to continue for another 1.5 years as per the highly experienced doctors attending to her – recovery is slow due to the multiplicity of the health issues but doctors have assured of full recovery in 1.5 years

Our insurance healthcare covers is completely unusable as Neha cannot be admitted in hospitals (except  for Surgeries) due to her acute low immunity level resulting inclusively, from very long administration of continuous antibiotics. As per the expert doctors treating her, she has an extremely high probability of acquiring HAI’s (hospital acquired infections) if admitted.

MEDICAL EXPENSES FOR  FUTURE 1.5 year OF TREATMENT ARE AS FOLLOWS :
  1. At-home Physiotherapy for PFD @ INR **1500/- per day. (required for min. 07 months. Offsite therapy near impossible due to extreme pain due to PFD;
  2. At-home Dry Needling therapy @ INR **2,500/- per session per week
  3. Hyper Baric Oxygen Therapy (HBOT) 60 sessions @ INR **8,000/- per session;
  4. Continuous Urine Culture each week along with antibiotics for 01 month (till culture report is gram negative) INR **2,500/- per culture
  5. Chiropractor sessions for sacrum joints and lower spine and for immunity augmentation @ INR **1,250 per session (x 60 sessions) = INR **75,000/- excluding onsite lodging expenses for 02 months;
  6. Online consultation charges with global expert Dr. Nicole Cozean (US based Worlds Best PFD Specialist) and follows ups approx. INR **200,000/- (deeply discounted at her discretion and goodwill for which we are very grateful);
  7. Misc. consulting Doctors’ consultation fees, diagnostics, allopathic drugs, etc. ~ INR **450,000/-
  8. Homeopathic drugs (Reckeweg® R1, R31, R5, R18 & Adel Akutur, Proscent, Upelva & Apo-Infekt): ~ INR **100,000/-
  9. Laser Machine To be purchased for Laser Therapy at home. BTL-HI-LASER CAT4 BTL 6000 12W costing 12.5 Lacs INR
______________________________________
Total Expected Expenses for next 1.5 years : approx. INR 30 Lacs / viz., approx.. INR 03 million.



To add to our woes, sustained physical, financial and mental stress managing my wife’s treatment, our son, my office & our home affairs all by myself and that too, since so long, has taken a very significant toll on my own health – historical ailments of hypertension, kidney stone and thyroid imbalances have shot up and I am also suffering badly from a knee ligament tear, a.k.a. ACL tear and meniscus tear in both my knees.

Long years of acute suffering, enormous stress on overall environment and tremendous strain on resources has been affecting Neha psychologically and almost scarring her… Her emotional pain due to her rather mindful guilt of neglecting our dear son Yashmit is driving her increasingly off late towards giving up all hope. Tragically, I myself is leaving hope as I do not have funds to take care of her medical treatments.
In sheer desperation, I am reaching out to you all.

PLEASE, PLEASE, PLEASE RENDER ANY FINANCIAL ASSISTANCE FEASIBLE TO THE BEST OF YOUR ABILITIES SO THAT AT LEAST MY WIFE’S LIFE AND OUR DEAR SON YASHMIT CAN HOPE FOR A FUTURE TOGETHER.  

Below are all the doctors prescriptions and case study of Neha. Please support to the best of your capabilities. 

For your invaluable contribution, I and Yashmit promise to plant a sapling at suitable locations for every donation made with your (donor’s) personal details, as maybe desired – at this juncture, we are able to offer alongside, only our heartfelt prayers for you.

Best Regards
Rahul & Neha
+91-843-122-6784
 









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