Mohan with his parents Chanda and Sujji
Mohan's illness has put a shadow of fear on the familyMohan is the youngest in his family, born over 20 years after Chanda and Sujji's marriage. His birth brought happiness to parents still grieving over losing a child. Chanda, Sujji and their daughters – all felt ready to finally be happy again. But in just 18 months, Mohan became very ill and Chanda felt a familiar fear for his child's life.
“He told us his stomach was hurting and started crying. He kept crying for two days. We realised that something was very wrong and went to the doctor. We came to Hyderabad in October for treatment. Since then, he needs to be admitted to the hospital once in every 10 days. He needs a new liver,” says Chanda.
Mohan has been diagnosed with glycogen storage disease – a condition where his liver doesn't properly store the body's sugars. The excessive sugar has damaged his liver completely – which has made life hell for little Mohan. He can't eat or play like before anymore. He has stopped growing and has regular seizures. A liver transplant is the only way for Mohan now.
When told that his little son needed a small portion of another person's liver, both his parents volunteered to donate their own liver. They are both a good match and Chanda has decided that he will donate his liver, so he and not his wife need to recover from the procedure.
Chanda is determined that he will not lose his child again.Chanda and Sujji know the pain of losing a child. Their 7-year-old son Madhu fell into a ditch and lost his life. It has been six years since his death, and these parents have found themselves once again facing a familiar nightmarish situation.
“Madhu fell down in a ditch I had dug on the farm and died. We never imagined something like this could happen. Now, I don't want to take any chances with Mohan's life. But even though we have admitted him in the hospital at least 20 times, he is not getting better. I am an uneducated person, I don't know what else I can do,” Chanda says.
Chanda lives in Devarakonda, Telangana. He as a small farm. He does farming on his field and on leased land nearby. Yearly, he earns less that Rs 1 lakh. For treatment, Chanda sold off his farm and borrowed heavily. He has paid bills worth Rs 7 lakhs till now and has nothing left to fund the life-saving liver transplant that Mohan needs.
How you can helpMohan has been very sick in the last few months. Intelligent for his age – he asks many questions about why he can't play anymore, or why his food has no taste. His parents have to talk to him all the time to make sure he takes all his medicines on time. His parents have made many sacrifices to keep him alive and healthy till now – but they have no way to arrange for a liver transplant worth Rs 16 lakhs. It is the one barrier sheer determination cannot overcome.
Your contribution will save Mohan and give his brave parents hope for his health.