My son Kannappan was diagnosed with Thalassemia when he was just 7 months old. He has been going to the hospital every month for 4-8 hours of blood transfusions. He needs injections every day at home to prevent complications from iron deposits as a result of blood transfusions. No matter how much they gave him, eventually he would be anaemic. It has been 8 years, his life has not changed yet!
He cannot even pronounce the name of the disease neither I but he knows his disease better than anyone. He feels perfectly well for the first week of the month. He feels tired the next, and then as if a toy with draining battery he drags himself home. He cannot play, if he exerts himself more, he would have to rush t the hospital almost every week.
My son does not have any friends because of his illness. The greatest pain of this disease is that it never allows him to have a bond with anyone. He spends most of his time in the hospital. I can feel the pain and emptiness in his eyes. I can’t imagine the psychological trauma he is going through at this young age.
I would ask myself, “Can God create someone only to see pain and suffering in this world?” Why my son has to go through so much of pain? He has missed the most precious time of his life – his childhood. Happiness is unheard of, to say that all he has experienced only pain in his life is an understatement. I’m desperate to see my son live a pain-free and normal life like any other child.I want him to know that life is more than needles and blood.