Baby Vimarsh did not have any noticeable problems at birth, but after 3 months everything went wrong for himNitin, his wife, Priya, and daughter, Vanika, welcomed Baby Vimarsh to their happy family in 2017. Nitin was doing well at work and with the addition of a baby boy, their lives were complete. But their happiness came with an expiry date, something they might not have imagined even in their worst nightmares.
The happy family was overjoyed with the addition of Baby Vimarsh, but fate had other plans
Vimarsh fell ill, no antibiotics could help him. His liver and spleen got enlarged. He was a diagnosed with HLH, a rare disease which made his own cells attack him. Their sweet, little son was dying.
“We were so so happy. I think we cast an evil eye on our happiness – otherwise there is no way that Vimarsh would start getting sick. It started with a fever at 3 months. It did not go away. We were treating him in our hometown in Himachal Pradesh, but soon he had to be shifted to a better hospital in Chandigarh. I had to take long leaves from work. It all went downhill from there." -Nitin.
The disease was killing him and his cure was a bone marrow transplant.
Baby Vimarsh’s body temperature never went back to normal. He got weaker, and he fed lesser and lesser with every passing day. The doctors told Nitin and Priyanka that intensive chemotherapy followed by a bone marrow transplant is the only way their sweet baby could be saved. Nitin and Priya didn't think twice. They decided do everything possible to keep their son alive.
The bank supported Nitin for the initial treatment and relatives, friends came forward to help. With all this support, the treatment continued and the family thought they can save their little son. But nobody could have predicted what were to happen next.
Nitin and his wife are taking good care of their sick child despite not having anything
Baby Vimarsh finally got the transplant, but deadly infections threaten to kill him nowAfter months of fighting his genetic disease through chemotherapy, Vimarsh got his transplant done two months back. However, within a month, his body started rejecting the donor cells. The symptoms that followed were so severe for little Vimarsh to bear.
“He started bleeding from his mouth and got seizures frequently. He lost weight. His face lost its childish charm and started looking grim. He couldn’t eat or drink. We thought we almost lost him.”- Nitin, with tears in his eyes.
Baby Vimarsh has lost all his hair and patches have formed on his skin
This baby is very critical now and needs constant care for 2 months in order to make it out aliveVimarsh needs 2 months of stay at the hospital in Delhi where he will get medicines and life-saving injections to fight his post-transplant infections. He is still not able to eat anything and is surviving on nutrition supplements given via IV line. His vitals are also very unstable. Even a day out of the hospital’s sterile environment is enough to kill him. His father, Nitin, has already exhausted all his savings on treatment and other expenses till now. The family is going through a very hard time figuring how to help their baby.
Nitin sleeps in the open and cannot afford one proper meal a dayNitin and his wife had to leave their 5-year-old daughter Vanika back home in Himachal Pradesh, to come to Delhi to save their baby son. For the first 8 months of treatment, the family stayed at a relative’s house. After that, they had to shift to a small hotel. But soon, they started running out of money.
Today, Priya and her son stay at the hospital while Nitin sleeps in parks at night along with his brother-in-law. Hotels have become too much to afford. Good food has also become a luxury. They need to arrange 15 lakhs to treat Vimarsh and save his life.
“We buy food from dhabas now because from there you can get a full meal for Rs 50, while at the hospital canteen you have to pay Rs 140. I have not gone to work for more than 3 months now and even Rs 140 is so expensive for me. How will I save my son?" - Nitin.