Father Gave Up All His Savings For Sick Baby Boy, Sleeps in Park Now

 “It is only a matter of two months’ time. The doctors have promised us that Vimarsh will get well after that. I will do anything to make him alright; even if it means that I have to sleep in parks at night and eat food from small street-side dhabas. Every paisa makes a difference for our family today." - Nitin Sharma, father of 15-month-old Vimarsh who is fighting deadly infections after a bone marrow transplant.

Baby Vimarsh did not have any noticeable problems at birth, but after 3 months everything went wrong for him

Nitin, a bank employee, his wife, Priya, and daughter, Vanika, welcomed Baby Vimarsh to their happy family in 2017. Nitin was doing well at work and with the addition of a baby boy, their lives were complete. But their happiness came with an expiry date, something they might not have imagined even in their worst nightmares.


The happy family was overjoyed with the addition of Baby Vimarsh, but fate had other plans

“We were so so happy. I think we cast an evil eye on our happiness – otherwise there is no way that Vimarsh would start getting sick. It started with a fever at 3 months. It did not go away. Not even antibiotics helped. Slowly his liver and spleen became enlarged. We were treating him in our hometown in Himachal Pradesh, but soon he had to be shifted to a better hospital in Chandigarh. I had to take long leaves from work. It all went downhill from there." -Nitin.

After spending 2-and-a-half months in the hospital, Vimarsh was diagnosed with a rare genetic disease that was killing him

Baby Vimarsh’s body temperature never went back to normal. He got weaker, and he fed lesser and lesser with every passing day. The doctors told Nitin and Priyanka that intensive chemotherapy followed by a bone marrow transplant is the only way their sweet baby could be saved. The worried parents did not think about the burgeoning expenses at that point of time; all they wanted was to see their son fight this rare disease successfully.

 “From the bank, I got about 25 lakhs for my son’s treatment. Relatives and friends helped to a certain extent too. Viimarsh underwent chemo at a good hospital in Delhi for 6 months. After that, finding a bone marrow donor for Vimarsh was a bigger task as none of us (Vimarsh’s father, mother or sister) were a match.  But finally, we were able to find somebody for Rs 8 lakhs. We just wanted Vimarsh to get the transplant as soon as possible." Nitin recalls.

They were waiting with hope for his life-saving bone marrow transplant when his fever returned with greater intensity

“Our son was starting to get better when his fever returned. He became weak. He had to get chemo sessions again. We had to stay put in Delhi, because everything was getting delayed. In between running around to get medicines and meeting doctors, I ceased to be myself. Going to work had become a distant idea. My son was suffering and I had to do everything to help. But on the side, my finances were dipping. I couldn’t get a grip on reality; everything was just a big mess.”-Nitin.

Nitin and his wife are taking good care of their sick child despite not having anything 

Baby Vimarsh finally got the transplant, but deadly infections threaten to kill him now

After months of fighting his genetic disease via chemotherapy, Vimarsh got his transplant done two months back. However, within a month, his body started rejecting the donor cells. Frightening symptoms started to appear which made his parents’ heart race.

“He started bleeding from his mouth and got seizures frequently. He lost weight. His face lost its childish charm and started looking grim. He couldn’t eat or drink. We thought we almost lost him.”- Nitin, with tears in his eyes.

Baby Vimarsh has lost all his hair and patches have formed on his skin

This baby is very critical now and needs constant care for 2 months in order to make it out alive

Vimarsh needs 2 months of stay at the hospital in Delhi where he will get medicines and life-saving injections to fight his post-transplant infections. He is still not able to eat anything and is surviving on nutrition supplements given via IV line. His vitals are also very unstable. Even a day out of the hospital’s sterile environment is enough to kill him. His father, Nitin, has already exhausted all his savings on treatment and other expenses till now. The family is going through a very hard time figuring how to help their baby.

How you can help

Nitin and his wife had to leave their 5-year-old daughter Vanika back home in Himachal Pradesh, to come to Delhi in their quest to save their baby son. For the first 8 months of treatment, the family stayed at a relative’s house. After that, they had to shift to a small hotel. But soon, they started running out of money.

Today, Priya and her son stay at the hospital while Nitin sleeps in parks at night along with his brother-in-law. Hotels have become too much to afford. Good food has also become a luxury.

“We buy food from dhabas now because from there you can get a full meal for Rs 50, while at the hospital canteen you have to pay Rs 140. I have not gone to work for more than 3 months now and even Rs 140 is so expensive for me. How will I save my son?" - Nitin.


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16th May 2018
Dear Supporters,
Thank you all for your support.

Vimarsh was admitted in BMT unit from past 3 months. He was on IV antibiotics. Last night, Vimarsh developed gasping because of which he was intubated and shifted to PICU.

Vimarsh has had multiple episodes of GI bleed previously as well. Doctors have suggested he will stay in PICU for a week or two and depending on her condition they will schedule a transplant surgery.
The family is really thankful to each one of you for the love and support you have show towards Vimarsh, we shall keep you all posted.

Thank you so much,
Regards,
Akansha

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Anonymous donated US $50
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Get Well Soon!!!

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Sunita donated Rs.500
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Vimarsh, get well soon. God bless you.