Help Uzma Fight Multiple Sclerosis. | Milaap

Help Uzma Fight Multiple Sclerosis.

I would humbly like to bring your attention towards the plight of my 17-year-old daughter, Uzma Jawed, who is suffering from a very rare disease called Multiple Sclerosis, and therefore seek financial assistance for her prolonged medical treatment.
Uzma started to show some physical problems 6 years ago. We started her treatment with local doctors but did not see any improvement in her health. Hence, they referred her to a Neuro surgeon, Dr. Sanatan Rath, in Cuttack, Odisha (India).
Uzma was under Dr. Rath’s treatment for few years but things started to get worse as he was unable to figure out the disease. We then took her to AIIMS, New Delhi (India), and after detailed tests and investigation AIIMS concluded that she was suffering from Multiple Sclerosis.
Multiple Sclerosis is a potentially disabling disease of the brain and spinal cord (Central nervous system). In Multiple Sclerosis, the immune system attacks the protective sheath that covers nerve fibers and causes communication problems between the brain and rest of the body. Some of the symptoms Uzma is having from the past 6 years are:
  • Unable to walk independently. 
  • Constant shivering of hands and legs. 
  • Partial loss of vision. 
  • Slurred speech
 We started Uzma’s treatment in AIIMS (Delhi) but she showed no signs of improvement. Then, we shifted her to “Vimhans Neuro Hospital” in New Delhi where she was treated for 2 years with no improvement. The doctors further suggested to take Uzma to the “Nimhans Neuro Center” in Bangalore, India, in November 2015.
Treatment at “Nimhans Neuro Center” has shown us a ray of hope. Uzma has shown improvements to the treatment and medicines. She is prescribed to take an injection called Betaferon every alternative day. For her to stabilize and start a normal life, she needs to take Betaferon for the next 7 years.
It has been almost 2 years already and we have exhausted all our resources to make sure she gets the appropriate dosage of the medicines. The price of 1 dosage of the injection, Betaferon, is Rs 2,646 in India ($40 approx). Thus, a monthly prescription costs  Rs 39,000 ($600 approx). Five years treatment would approximately cost Rs 23,40,000 (Twenty Three Lakhs Forty Thousand). For the prolonged treatment process our financial condition has miserably worsened and now has become very difficult to afford the medicines. I have also taken debt for Uzma’s treatment as my earnings were not enough to cover the cost of her treatment. Due to the worsening financial condition, it has become very difficult for me to afford the injection and her treatments.
I, therefore, humbly request for financial assistance in buying this prescribed injection, BETAFERON, to continue with her treatment. It is a foreign-made (Germany) injection and is imported and marketed in India by Bayer Zydus Pharma, Mumbai, India. You can help me purchase it from RS Enterprises Pvt. Ltd, Bangalore India.
Any amount of help extended would be greatly appreciated and oblige me and my family forever. We only hope and pray Uzma gets back to her feet and to a normal life again.
The documents related to Uzma’s disease and treatments are attached below.
You can contribute in cash or send draft/payments directly to below vendor for her prescribed medicine.

 
Thank you,
Jawed Akhter Siddiqee (Father)

 
BETAFERON Invoice- One Month Supply
BETAFERON Invoice- One Month Supply
Doctor's Letter NIMHANS BANGALORE
Doctor's Letter NIMHANS BANGALORE
Admit Letter- NIMHANS Bangalore
Admit Letter- NIMHANS Bangalore
Doctor's Letter- Vimhans New Delhi
Doctor's Letter- Vimhans New Delhi
Doctor's Letter- AIIMS New Delhi
Doctor's Letter- AIIMS New Delhi
BETAFERON-Injection Box
BETAFERON-Injection Box
Medical Estimate-BETAFERON (Germany)
Medical Estimate-BETAFERON (Germany)
Ask for an update
2nd June 2018
Dear Supporters,
Thank you all for your support.

Uzma's condition is a little better now than before. Her dosages of Betaferon were on time this time. Doctors have suggested a few more tests and an MRI so that they can decide a future course of action for her.

Thank you all for your support, Please keep sharing this campaign among your family and friends and please keep praying for Uzma.

Thank you so much for your support,
Regards,
Jawed
Dear Supporters,
Thank you all for your support.

Uzma's condition is a little better now than before. Her dosages of Betaferon were on time this time. Doctors have suggested a few more tests and an MRI so that they can decide a future course of action for her.

Thank you all for your support, Please keep sharing this campaign among your family and friends and please keep praying for Uzma.

Thank you so much for your support,
Regards,
Jawed
25th April 2018
Dear Supporters,
Thank you all for your support.

Uzma's condition is deteriorating since last month. As of now, she is not able to walk and maintain balance. Due to our financial condition, she has missed her dosage of Betaferon and because of which her condition is deteriorating. Doctors have suggested that they will do a MRI Scan and based on whose reports they will suggest a future course of action.

I will be withdrawing funds to settle the bills of medication up till now and with the help of this we'd be able to buy few dosages of Betaferon for her.
We sincerely thank each on of you for your love and support but we still need your support. Please share this campaign with your family and friends and keep Uzma in your prayers.

Thank you,

Regards,
jawed

Dear Supporters,
Thank you all for your support.

Uzma's condition is deteriorating since last month. As of now, she is not able to walk and maintain balance. Due to our financial condition, she has missed her dosage of Betaferon and because of which her condition is deteriorating. Doctors have suggested that they will do a MRI Scan and based on whose reports they will suggest a future course of action.

I will be withdrawing funds to settle the bills of medication up till now and with the help of this we'd be able to buy few dosages of Betaferon for her.
We sincerely thank each on of you for your love and support but we still need your support. Please share this campaign with your family and friends and keep Uzma in your prayers.

Thank you,

Regards,
jawed

Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.63,565
raised of Rs.2,340,000 goal

33 Supporters

Beneficiary: Uzma Jawed info_outline

Supporters (33)

A
Anonymous donated Rs.1,000
6 months ago
A
Anonymous donated Rs.1,100
6 months ago
MB
Mourya donated US $25
6 months ago
Z
Zeeshan donated Rs.1,000
6 months ago
GK
Geeta donated Rs.500
6 months ago

Get well soon Uzma

S
SHIWANIJHA donated Rs.3,000
6 months ago