Help My Mother Urmila undergo Lung Transplant | Milaap

Help My Mother Urmila undergo Lung Transplant

My name is Prateek Nagar and I am here to raise funds for a double-lung transplant that has been recommended to my mother, Urmila Nagar.

My mother, who is just 53 years old, was diagnosed with Idiopathic Pulmonary Fibrosis (IPF). The condition involves irreversible scarring of the lung tissue and eventual failure of the patient's respiratory mechanism. It is a rare but one of the most debilitating medical conditions in the world. IPF is an incurable disease with a poor prognosis. Having said that, she was fortunate to be under the care of exceptional doctors who had managed to keep her disease's progression under check. However, despite the best medical care and consultations, her illness has aggressively progressed to the advanced stage.

Ever since July 2017, her condition has continuously declined and warranted frequent hospitalizations. She has been on 24*7 supplemental oxygen support for almost two years now and in addition to that, she requires respiration assisting machines 10 hours per day. Owing to a steep deterioration in her health coupled with an unconvincing response to the best available medication, her treating doctors have strongly recommended us to to proceed with a lung transplant - the only option left to prolong her life.

Fortunately, Apollo Hospital - Chennai has a fully functional and a fairly experienced lung transplant program. For the recommended transplant, we have to relocate to Chennai and wait for a suitable donor match. This could take several weeks or even months. Following the matching and confirmation of a donor, she will be operated upon and kept under observation in the ICU for however long it takes before being shifted to a recovery ward. The entire duration of pre-op assessment, transplant, post-op care, recovery and rehabilitation is expected to last several months.

An uncomplicated transplant alone is expected to cost upwards of Rs 50,00,000. In the instances of complications, bleeding and rejection, that occur quite often in lung transplant cases, the hospital stay is extended for an indefinite period and the additional expenses could be as high as Rs. 30,00,000. 

As per the prevalent practice of the time, my mother was medically insured for Rs 3,50,000 in 1999 when the disease was detected. Therefore, as per the norms of the insurance industry, her insurance coverage has been capped at Rs 3,50,000 for the particular illness since 1999. Since July 2017, multiple hospitalizations, expensive medicines coupled with having to acquire expensive various medical equipment have exhausted my family's savings.

With this backdrop, I urge you to extend your generous support in making this transplant a success. With the financing of the transplant taken care of, my family will have one less reason to worry and we can focus all our efforts in ensuring the best medical care for her.

Please contribute and keep sharing this campaign link with your friends and family to get the word out. I am extremely grateful to all the people who express solidarity and extend help to my family during such a time.
Lung Transplant - Procedure Estimate
Lung Transplant - Procedure Estimate
3
3
2
2
Hospital report
Hospital report
Ask for an update
20th August 2019
Hi everyone,

I would like to share with you some recent developments since my last update. My mother was recently admitted to the hospital again with complaints of breathlessness, chest pain and low oxygen saturation. The team of doctors shifted her to the Critical Care Unit (CCU) where she was finally stabilized. No evidence of infection was found which suggested a progression in her disease leading to worsening of her symptoms.

Since her discharge from the CCU last week, her dependency on supplemental oxygen has increased. However, she continues to undergo physiotherapy sessions to maintain/improve her muscle mobility and is continuing treatment for the underlying disease - IPF while awaiting a suitable donor match.

I'd like to thank everyone for their support and good wishes. I shall continue sharing updates on this forum. Thank you!

Regards,

Prateek
Hi everyone,

I would like to share with you some recent developments since my last update. My mother was recently admitted to the hospital again with complaints of breathlessness, chest pain and low oxygen saturation. The team of doctors shifted her to the Critical Care Unit (CCU) where she was finally stabilized. No evidence of infection was found which suggested a progression in her disease leading to worsening of her symptoms.

Since her discharge from the CCU last week, her dependency on supplemental oxygen has increased. However, she continues to undergo physiotherapy sessions to maintain/improve her muscle mobility and is continuing treatment for the underlying disease - IPF while awaiting a suitable donor match.

I'd like to thank everyone for their support and good wishes. I shall continue sharing updates on this forum. Thank you!

Regards,

Prateek
29th July 2019
Hi everyone,

Following an extensive pre-transplant assessment which spanned over the last 3 weeks, my mother has now finally been enlisted for the lung transplant program. My mother's unyielding spirit coupled with the efforts put in by the doctors and physiotherapists made it possible for her to pass some critical mobility tests that were crucial for her to be considered as a suitable candidate for the transplant program.

The risks and benefits associated with this major transplant were extensively discussed between a recent meeting between the doctors and my family after which we offered our consent for the procedure.

NEXT STEPS: My mother will now be put on a centralized list that matches patients in need of organs with donors around the country. After the doctors are notified of a potential donor match, there are extensive tests conducted by the hospital to determine the feasibility of the donated organ. In case the doctors are satisfied with the results of the test, they will proceed with the transplant.

I shall keep sharing all relevant updates regarding the donor search, and her health on this forum for everyone's knowledge. I would like to once again thank everyone for their unconditional support.

Thank you!
Hi everyone,

Following an extensive pre-transplant assessment which spanned over the last 3 weeks, my mother has now finally been enlisted for the lung transplant program. My mother's unyielding spirit coupled with the efforts put in by the doctors and physiotherapists made it possible for her to pass some critical mobility tests that were crucial for her to be considered as a suitable candidate for the transplant program.

The risks and benefits associated with this major transplant were extensively discussed between a recent meeting between the doctors and my family after which we offered our consent for the procedure.

NEXT STEPS: My mother will now be put on a centralized list that matches patients in need of organs with donors around the country. After the doctors are notified of a potential donor match, there are extensive tests conducted by the hospital to determine the feasibility of the donated organ. In case the doctors are satisfied with the results of the test, they will proceed with the transplant.

I shall keep sharing all relevant updates regarding the donor search, and her health on this forum for everyone's knowledge. I would like to once again thank everyone for their unconditional support.

Thank you!
7th July 2019
Dear Supporters,

We are extremely grateful for your constant and unconditional support. My family availed the air ambulance services to transport my mother from Delhi to Chennai. She is under hospital admission and being evaluated by the team of doctors there.

To give you the latest update, her PET scan results showed signs of advanced fibrosis, implying that her disease has progressed to the final stages. There has been a significant reduction in her muscle functionality due to which she has been recommended physiotherapy sessions to recover some of her lost mobility. Further investigations revealed a significant blockage in her artery which will be addressed through a by-pass surgery at the time of the lung transplant.

My mother continues to remain positive and appreciates the support and good wishes pouring in. I request you to keep spreading the message, and continuing to support us.

Thank you,

Prateek 
Dear Supporters,

We are extremely grateful for your constant and unconditional support. My family availed the air ambulance services to transport my mother from Delhi to Chennai. She is under hospital admission and being evaluated by the team of doctors there.

To give you the latest update, her PET scan results showed signs of advanced fibrosis, implying that her disease has progressed to the final stages. There has been a significant reduction in her muscle functionality due to which she has been recommended physiotherapy sessions to recover some of her lost mobility. Further investigations revealed a significant blockage in her artery which will be addressed through a by-pass surgery at the time of the lung transplant.

My mother continues to remain positive and appreciates the support and good wishes pouring in. I request you to keep spreading the message, and continuing to support us.

Thank you,

Prateek 
Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
Rs.3,965,182 raised

Goal: Rs.8,000,000

Beneficiary: Urmila Nagar info_outline

Supporters (1488)

AB
Abhishek donated Rs.2,000
SP
Subramanian donated Rs.20,000
AB
AVINASH BALASUBRAMANIAM donated Rs.4,000
A
Anonymous donated Rs.1,000
GR
Gaurav donated Rs.10,425

I pray that your mothers speedy recovery

VB
VIJAY BANSAL donated Rs.20,000