He's Suffered From Rare Genetic Condition His Whole Life, Help Him | Milaap
He's Suffered From Rare Genetic Condition His Whole Life, Help Him
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Raised
Rs.22,158
of Rs.22,00,000
16 supporters
  • Himshikha

    Created by

    Himshikha
  • PK

    This fundraiser will benefit

    Priyansh Kori

    from Bhopal, Madhya Pradesh

Story


“At an age where he should have been enjoying a carefree childhood, he’s fighting a life-threatening condition. He’s spent more days in a hospital than at home or school. I’ve exhausted every little penny I had on his treatment. My husband has also stopped supporting us. But, there is no way I’m giving up on my child. I’ll do all it takes to save him” - Laxmi, mother

A rare condition is threatening his life

It’s been 6 years now that Priyansh has been suffering from a rare, genetic immunodeficiency called Wiskott-Aldrich Syndrome. It occurs mostly in male children, and causes their immune system to not function properly. The bone marrow has difficulty producing platelets, making the child prone to bleeding - as in the case of Priyansh.

“He was only 2 years old at the time, and suddenly began bleeding profusely from the nose and mouth. We rushed him to a local hospital and there, we found out that his platelet levels were extremely low. He underwent a platelet transfusion that stabilized his condition, but the doctors advised that we get him checked at a bigger hospital. Instantly, I knew something had to be wrong. I just hadn’t expected to find out that it was a condition that could take his life.” - Laxmi

A bone marrow transplant is his only chance at survival

“Heeding to the doctors’ words I took him to a bigger hospital, where he was officially diagnosed, and they recommended he undergo a bone marrow transplant at the earliest... But when I heard the cost, I knew I couldn't afford it." - Laxmi

Laxmi was disheartened just seeing the price tag that her son’s life-saving treatment came with. But she didn’t lose hope. She shuffled from one hospital to another, in every accessible area, enquiring about the treatment Priyansh would need. But it was all the same everywhere - an unimaginably large sum that she could never bear on her own.

With nothing left to keep going, she’s struggling to save her son

Priyansh is her only child, and Laxmi is single-parenting while working as a domestic help to make a living. After her husband turned his back on them and cut off all financial support 2 years ago, she’s been striving to keep her little family afloat with some help from her parents. But now, they’ve run out of every and any financial resource they had.

“All the struggles and the sacrifices I’ve made until now - they are worth it if it means that my son will be here with me tomorrow. Platelet transfusions have kept him alive thus far, but it is not a cure, and neither is it a feasible option in the long run. He shows no signs of improvement, and now, his skin is littered with dark patches. Bone marrow transplant is the only way he can live a long and happy life, but I’m financially shattered. I don’t know what to do.. I can’t afford it, but I can’t lose my son like this either!” - Laxmi


8-year-old Priyansh is a bright little child with a keen interest in music. He loved learning to play musical instruments and going to school. He’s missed out on a lot of joys in life because of his condition, and wishes to be like any other child his age.

You can make that happen for him and give him an even brighter future with your contributions.



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