A painful story of Master NITHRSHAN, Documented by Joshin for his dreams comes true. “Papa.. I wanted to go to school with my elder brother holding school bag and books” when my son NITHARSHAN says every day, my eyes always fills with tears. My name is VIAKUNDAMANI. R, a daily labour from a poor family from Kalkulam Taluk of Kanyakumari district. My son Nitharshan is suffering from Hemophagocytie Lymphohistiocytosis (HLH). This is a life threatening immunodeficiency disease. He needed a Peripheral Blood Stem Cell Transplant (PBSCT).
When I look back, 10 years ago, my daughter Nithu also suffered the same disease and died on the age of one and half years. That time the medical science was not so developed and accessible to a man like me. We felt hopeless and did the cremation of my daughter with tearful of eyes.
My son was suffering from frequent fever and infections, we realized that the symptoms are very similar to my daughter has. We took him to KIMS hospital Trivandrum. A month later, after several test and biopsy, they told us to consult with Christian Medical college, Vellore. In CMC Hospital, doctors did similar kinds of test and biopsy to confirm the disease. After several consultation, they confirmed they my son is having HLH disease.
When we heard that, my son is having a life threatening disease and like my daughter, his life is in danger; my wife JENIFA went on depression and tried to convince me to commit suicide.
For a time period, I also felt that Jenifa’s suggestion is the end of all our problems. Again I started thinking on our existence in the world. All the living things in the world have an end. This life is too small and prayed to Almighty to give strength to fight with the circumstances. Somehow, I convinced my wife to do whatever possible to our son and bring him to a healthy life.
I have sold my land and did treatment in KIMS Trivandrum and CMC Vellore till now. Almost spend 7 Lakhs for his treatment. Being a daily labour, my earnings are very limited and somehow I was taking care of my family. In this mechanized world, an unskilled person cannot earn more than Rs.6000 in a small town. The estimated expense for the Stem Cell Transplant is Rs. 14 Lakhs. Post-surgery expenses are not estimated. Your valuable contributions will help us to bring our child to a new life. I wanted him to be doctor, that’s my dream for him.