“She cries and screams all day long because she has to be pricked with injections so many times. The pain is so unbearable that she tries to pull it out on her own. My baby is only 1-month-old and hasn’t had a single day without pain.”
Mitali’s baby girl has a serious disease that makes her extremely susceptible to life-threatening bacterial infections. Her body can’t protect her and even the smallest infections can be fatal. She was only 5 days old when she was admitted to the hospital and the trauma has been never-ending since then. Mitali and Sachin are desperate to save their baby. She needs an urgent bone marrow transplant to live, but they're is struggling to find a way save their only child.
In just 4 days, their baby’s life changedMitali had a normal pregnancy and delivery. She and her husband Sachin were thrilled to take their baby girl home and had even planned a family get-together to celebrate her birth. Little did they imagine that only a few days later, they would be given the worst news of their lives.
“She was healthy and fine for the first four days after her birth, but on the fifth day, everything changed. Her stomach was bloated, and she had boils in her armpit. The doctor told us she had a disease that didn’t let her fight against any infections and she has no immunity. Even a cold can be dangerous for our baby.”
Mitali’s baby has a rare, life-threatening disorder called Leukocyte Adhesion Deficiency due to which she has bacterial infections that can be fatal since her body isn’t strong enough to fight it.
Mitali and Sachin’s dreams of a healthy future for their baby have come crashing down. In a matter of few days, their entire life changed. They had never thought that the baby that was once laughing in their arms would be so sick that they couldn’t even hold her again. They’re willing to do anything to save her now.
Mitali and Sachin can’t even hold their baby for long without putting her life at riskMitali and Sachin have only been shuttling between home and hospital the past month. When their baby is not in the hospital, she’s at home, isolated from everyone else.
“We have to keep her in a room away from all of us. No one, besides us, can touch her or even see her. We have to be that careful. Even when I go to see her, I have to wear a mask and take precautions. We need to keep her away from anything that might harm her. Even when she’s at home, it’s like she’s in the hospital. Our baby can’t protect herself from anything, and as parents, we must do that for her.”
Mitali’s baby doesn’t have much human contact throughout the day because of her disease. She’s alone in her room, oblivious of the danger ahead of her. Even her grandparents haven’t been able to hold her yet. Mitali and Sachin are scared that they might lose her to a deadly disease at any moment.
Her doctors call her a fighter, but she can’t be saved if her parents can’t afford the treatmentTheir baby’s only experience with the world has been the pain of her disease. She falls sick every second day and is taken to the hospital immediately. Mitali’s baby needs an urgent bone marrow transplant to survive. The doctors call her a fighter as she has bravely endured everything so far and survived. But all her progress will be for nothing if she doesn’t get the transplant soon.
“She can’t even get a vaccination before a bone marrow transplant. It’s her only chance to make it. This has been the most difficult month of our lives. We haven’t even named our baby yet. Our only focus has been saving her. We’re emotionally and financially exhausted now."
How You Can HelpMitali’s baby will not make it without a bone marrow transplant. The parents are a 50% match to be donors and the baby can be saved with timely treatment. However, her parents can’t afford Rs 36 lakhs needed for the transplant in time. Sachin works as an accountant in a small hotel in Mumbai and his earnings aren’t enough to cover her medical bills. Mitali and Sachin need your help to save their baby.
Your support can save Mitali’s baby’s life.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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