“He can hardly sit up for an hour now. He’s lost 8 kgs in just 15 days, and has painful lumps all over his neck. Now even the air he breathes can deteriorate his health. We have to be very cautious now.” – Bhargavi
The painful lumps on his neck where a symptom of his blood cancer
Chemotherapy is killing his immunity, but it’s the only thing that can save himNagendra (15) has always been a sickly child. It was only when he was 5-years-old did his parents, Bhargavi and Shekhar, find out why – he has Wiskott-Aldrich syndrome due to which his immunity system cells were nonfunctional. This meant he missed many days of school because of infections and needs injections every 20 days to stay healthy. His immunity is so weak that he could hardly fight against small infections, let alone the cancer cells.
“He started chemotherapy. It’s making him weaker and he has infections every other day, but it’s the only thing that can save him from blood cancer. He has no other option.” - Bhargavi
Nagendra had learnt to live with his dangerous disease before he was diagnosed with cancer
His father had to even quit his private job to take care of himBhargavi and Shekhar have been struggling for 10 years to keep their son alive. Shekhar had to quit his job at a private company a few years ago because of Negandra’s frequent hospitalizations. He then opened a small mobile accessories shop in Bangalore. He earns Rs. 10,000 per month. Bhargavi also had to quit her job in just 6 months because of his illness. She hasn’t worked in 3 years. They have spent nearly 30 lakhs on his treatment so far by selling the property they owned, taking loans and selling their jewellery. Now, they have nothing left for his cancer treatment.
“We had to take another loan and spent 5 lakhs last month on the tests and chemo. His health and our finances are all we’ve ever focused on all these years. I wasn't even able to give my older daughter the attention she needed growing up because of all this. It has consumed our lives, and now our difficulties have only increased.” – Bhargavi