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Help us to save Shrijay

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Updates (10)

Our son Shrijay is suffering from rare liver disease called Glycogen Storage disorder, he is 1 year 7 months old now. Due to the above stated disease he has growth failure. From the age of four months he has been admitted into hospital 8 times, in which 6 times he was in ICU and was kept on ventilator and other life saving procedures were done. Right now he is in ICU due to acute metabolic acidosis and the connected ailments.

As per the panel of Doctors' opinion, liver transplantation is the last resort which can save the child and this has to be done as early as possible. Tests before surgery and the cost of transplantation and medicines after surgery is estimated to cost over Rs.25 Lakhs. Even after that child has to be on immuno suppressants life long which are again costly. We have undergone lot of hospital expenses till date. We can no longer bear the cost of treatment of our child. As such we are desperately seeking help through this forum. Kindly help us generously to save our child.

Doctor's Note

Estimation Letter 2nd page

Hospital Estimation Letter

Liver Scan Report

Glycogen Storage Disorder Report

Lactate & Triglycerides Report

Liver Biopsy Report

Death Report

Baby work up admission bill

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17th July 2017

Dear Supporters,

We need to pay balance bill amount to the hospital, for which we are withdrawing funds. Every moment of our life is so painful now without our baby. He will live in our memories forever. May his soul rest in peace.

We need to pay balance bill amount to hospital, for which we are withdrawing funds. We were so delighted when surgery was successful, he was shifted to ICU, was in ICU for 10 days and was about to get shifted to room next day, suddenly he got cardiac arrest in ICU and even doctors couldn't save him. It's our fate and bad luck that despite all our efforts we couldn't save Shrijay. Every moment of our life is so painful now without our baby. He will live in our memories forever. His loss and pain will be lifelong with us. Might be God has some different plans and wanted to relieve him from the entire trauma he has undergone since birth due to injections and medicines and continuous hospital admissions. At least in his next birth he should have completely healthy and long life. May his soul rest in peace.

Thanks for all your support.

Regards,

Pavani

Thanks for all your support.

5th July 2017

Very sad to inform you all that we lost Shrijay. Our baby passed away in ICU due to multiple organ failure. Liver Transplantation surgery was successful. Post Operative complications have arisen due to his heart being so weak. As informed by doctors, "suddenly on 03rd July night he suffered severe seizures and heart beat rate increased abnormally and then stopped, causing death".

I have undergone surgery for liver donor, and everyone has come forward and contributed financially to save our baby. Still doctors efforts, our prayers, your help nothing could save Shrijay. We feel like we have lost our life. It's so hard to be without our baby for whole life. His memories will never leave us wherever we go whatever we do. His death news is sudden shock and unbearable loss to us. We miss Shrijay, may his soul rest in peace.

Thank you so much for all your kind help.

3rd July 2017

Dear Supporters,

Shrijay is still in ICU at hospital. He still has to recover more.
Please pray for the baby's speedy recovery.

Thank you for the wonderful support.