Help us to save Shrijay
Our son Shrijay is suffering from rare liver disease called Glycogen Storage disorder, he is 1 year 7 months old now. Due to the above stated disease he has growth failure. From the age of four months he has been admitted into hospital 8 times, in which 6 times he was in ICU and was kept on ventilator and other life saving procedures were done. Right now he is in ICU due to acute metabolic acidosis and the connected ailments.
As per the panel of Doctors' opinion, liver transplantation is the last resort which can save the child and this has to be done as early as possible. Tests before surgery and the cost of transplantation and medicines after surgery is estimated to cost over Rs.25 Lakhs. Even after that child has to be on immuno suppressants life long which are again costly. We have undergone lot of hospital expenses till date. We can no longer bear the cost of treatment of our child. As such we are desperately seeking help through this forum. Kindly help us generously to save our child.
As per the panel of Doctors' opinion, liver transplantation is the last resort which can save the child and this has to be done as early as possible. Tests before surgery and the cost of transplantation and medicines after surgery is estimated to cost over Rs.25 Lakhs. Even after that child has to be on immuno suppressants life long which are again costly. We have undergone lot of hospital expenses till date. We can no longer bear the cost of treatment of our child. As such we are desperately seeking help through this forum. Kindly help us generously to save our child.
Liver Scan Report
Lactate & Triglycerides Report
Liver Biopsy Report
Glycogen Storage Disorder Report
Hospital Estimation Letter
Estimation Letter 2nd page
Doctor's Note
Ask for an update
Thank you all.
21st May 2017
Dear supporters we thank you for your kindness. Your contributions and support are truly strengthening our hopes for giving Shrijay a healthy and long life. We assure you that whatever amount is collected through donations we will spend each and every Rupee for our baby’s treatment itself. After surgery, the baby has to take immunosuppressants daily and lifelong so that his body accepts new liver. Those medicines are estimated to cost over Rs.25,000 per month. I am attaching recent blood test and scan reports of our baby. Those reports suggest that surgery needs to be done at the earliest possible convenience. We are eagerly looking forward to the completion of our targeted goal amount of 25 Lakhs so that we can inform Doctors to go ahead for their surgical procedures. We have even applied for CM Relief Funds. We have met the concerned authorities and explained the criticality of our baby’s position and urgency of the needed funds. Hope to receive some positive response from the government within stipulated point of time. We will keep you posted on that once we hear from them.
We stay at Hyderabad, Telangana, India.
We can be reached on the below contacts:
B. Jagan Mohan Rao (Father of Shrijay)
Phone: 9642926622
Email: jagan.b2710@gmail.com
B. Pavani (Mother of Shrijay)
Phone: 9989060222
Email: pavanibolakonda@gmail.com
Thank you all.
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B. Shrijay
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