Help My Newborn Baby Girl Fight Congenital Heart Defect - HLHS | Milaap
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Help My Newborn Baby Girl Fight Congenital Heart Defect - HLHS

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Story

My name is Munawar. I am trying to raise funds to save one of my twin daughters who was born with Hypoplastic Left Heart Syndrome (HLHS - https://en.wikipedia.org/wiki/Hypoplastic_left_heart_syndrome), caused due to critical Aortic Stenosis (AS - https://en.wikipedia.org/wiki/Aortic_stenosis). She is admitted to the NICU (at Fernandez hospital, Hyderguda) since she was born.

Pre-birth:

During the pregnancy stage, the baby was diagnosed with critical Aortic Stenosis (AS), which required a fetal intervention (reaching inside the uterus to help a fetus who has a problem) procedure - ‘Percutaneous Balloon Aortic Valvuloplasty (PBAV)’ (https://en.wikipedia.org/wiki/Aortic_valvuloplasty). Over a period of one and a half month, my wife got admitted thrice at the Care Hospital, however, the procedure couldn’t be performed due to the complexity and high-risk involved. As a result, the baby’s heart developed a defect known as the Hypoplastic Left Heart Syndrome (HLHS). In this condition, the left part of the heart is severely underdeveloped and cannot pump the blood to the body, leading to death.

Post-birth:

After birth, the baby was immediately moved to Care hospital, where the PBAV procedure was successfully done to remove the blockage in the heart valve. However, as the left part of the heart is severely underdeveloped, the baby was admitted back to the NICU at the Fernandez hospital where her treatment is ongoing.

Life at NICU:

It’s been over 12 days now that the baby is admitted to the NICU (‘Isolation’ section). As conventional/normal ventilator wouldn’t sustain her, she was put on HFO ventilation. Also, she’s constantly being given various medications and injections to assist the function of her heart and other vital organs, and to treat infections.

The doctors from both Care and Fernandez hospitals are diligently extending their full support to ease the baby’s pain and suffering and to ensure that she gets the best possible treatment. While the baby is responding positively, it’s a tiringly slow and long process before we can expect a favourable recovery.

About us:

I work at a private firm and my wife is a homemaker. So far, it’s been a very long and challenging journey for us - physically, mentally, emotionally, and financially. However, we are hopeful in God and determined to continue this fight along with our precious little daughter and to give her all the love, care and support, so that her precious life is given a chance to come out victorious.

We have already spent all our savings, taken help from all who we can, and exhausted all resources and avenues, to have come this far. But our daughter still has a very long way to go before she recovers, and if we are unable to pay the bills now, we’ll have no other option but to stop the treatment.

We are reaching out to you (as a last resort), to seek financial assistance, because we are unable to bear the expenses anymore. We are very positive and hopeful that our beautiful little princess has a good chance of making it through, if only she is able to get the treatment. The daily expenses are between Rs. 25,000 and 30,000. Per the doctors, it would take months before we can see a favourable outcome. The estimated treatment cost for the next two months is about Rs. 15,00,000.

I urge you to help save her by donating. No contribution is small or insignificant. We shall always remain grateful and indebted to you. If you aren’t able to donate, we request you to help her by praying for her recovery, and also sharing her story with someone whom you know can contribute financially.

May God bless you for all your help.
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Rs.0 raised

Goal: Rs.1,500,000

Beneficiary: Aafiya info_outline