Akash Will Succumb To Deadly Infections If He Does Not Get Help Soon

2-year-old Akash has a rare genetic disease that is causing low immunity. His body first stopped making cells that protect him against infections. He has been suffering from constant cold and fever from when he was 2 days old, and soon, without help, he might succumb to an infection. Akash needs a bone marrow transplant, and his parents are unable to afford it.
Every day my son is suffering from an infection 
He was 2 days old when this started. It felt normal when Birender and Reena’s newborn baby caught a cold and fever, but soon, he was so sick that they had to take him to the hospital. The doctor diagnosed the baby of serious infection. His platelets were down. For 14 days he was in the ICU getting antibiotics and blood transfusions.

“It was a living hell until we brought Akash back home. For 2 weeks, everything seemed fine. We thought the worst was behind us, but he fell sick again. This repeated for weeks, until he was 4 months old, when our doctor at Tata Motors Hospital referred us to CMC. After weeks of tests and reports, a bone marrow test revealed that my son’s body was not producing enough neutrophils. His immunity was very low. If time passed, even a cold could kill him.”


There is a cure, and for over a year we have not been able to afford it

This came as a shock to the family. Birender, an employee at Tata Motors in Jamshedpur, left his older son, Aman, with relatives and stayed back in Vellore with his wife and Akash. They begged the doctors to do everything possible to help Akash.  

“We said we will stay as long as possible. He had bone marrow failure. They said only a bone marrow transplant could save him now. It would cost us Rs. 25 lakhs, and Reena would be the donor as Aman was not a match. My company has helped us with the bills through the diagnosis. I have maxed out on the benefits. Even if I sell everything I own, borrow to the maximum extent, I cannot come up with this money. They will not start treatment for Akash without this fund.”
His bone marrow is slowly failing
Months have passed. Birender and his family are back in Jamshedpur with Akash on heavy antibiotics. Now, platelet count has also fallen. They rush to the hospital every now and then. He cannot go out of the house, and he cannot even go to the hospital as even the slightest infection can be fatal to him, but situation mandates medical intervention every two weeks.  


“At home, he is almost like a normal child. You cannot tell the difference. The minute he falls sick, we can see how it affects him. I cannot bear it. I feel like I’ll lose him anytime. We have to keep changing the sheets on the bed, clean the house multiple times a day. Sanitize ourselves and the surroundings to make sure he is fine. We are praying to God every day to keep him alive, and try to stay positive that some help will come through.”


How can you help

Yesterday Akash was doing well. Today, he has a severe cold and cough. Your contribution can save him before a bone marrow failure takes his life.  

Supporting Documents  
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
Certificate from CMC Vellore about the procedure and cost
Certificate from CMC Vellore about the procedure and cost
Cost breakdowns
Cost breakdowns
Ask for an update
4th March 2018
Dear Supporters,

Thank you for the wonderful support that you have shown towards my son Akash. I just do not have words to thank you all for the wonderful support and blessings that you have shown towards my son.

I have withdrawn a sum of 1.5 lakhs so far from the campaign on Milaap against bills of a smaller amount as we had to conduct a few tests and purchase medication. He has been admitted to CMC Vellore for further treatment and the doctors suggested us to apply for a grant cum relief fund which will help us further with his treatment.

I will be withdrawing all the funds raised via this campaign to my personal account to clear all the pending expenses. Post which the doctors will be helping me to apply for SRTT funds from Tata Memorial for the balance amount required. This will help me to gather the remaining amount as a relief and we can continue with his treatment without any delay. 

I will further keep you posted with the details about his health and the expenses that we have incurred along with invoices. Once again, I would like to thank all of you from the bottom of my heart for the strength that you have bestowed upon me in this difficult time. Please do pray for his health and speedy recovery. Will keep you posted.

Regards,
Birender Kumar Singh
Dear Supporters,

Thank you for the wonderful support that you have shown towards my son Akash. I just do not have words to thank you all for the wonderful support and blessings that you have shown towards my son.

I have withdrawn a sum of 1.5 lakhs so far from the campaign on Milaap against bills of a smaller amount as we had to conduct a few tests and purchase medication. He has been admitted to CMC Vellore for further treatment and the doctors suggested us to apply for a grant cum relief fund which will help us further with his treatment.

I will be withdrawing all the funds raised via this campaign to my personal account to clear all the pending expenses. Post which the doctors will be helping me to apply for SRTT funds from Tata Memorial for the balance amount required. This will help me to gather the remaining amount as a relief and we can continue with his treatment without any delay. 

I will further keep you posted with the details about his health and the expenses that we have incurred along with invoices. Once again, I would like to thank all of you from the bottom of my heart for the strength that you have bestowed upon me in this difficult time. Please do pray for his health and speedy recovery. Will keep you posted.

Regards,
Birender Kumar Singh
15th February 2018
Dear Supporters,

Thank you for the support. Akash is now in CMC -VELLORE, the process and preliminary tests were done for both, the child and his mother who will be the donor. The doctors told that the main procedure (bone marrow transplantation) will be done soon after the reports are in.

Thank you for your support. Please do pray for his health and speedy recovery. Will keep you posted. 
Dear Supporters,

Thank you for the support. Akash is now in CMC -VELLORE, the process and preliminary tests were done for both, the child and his mother who will be the donor. The doctors told that the main procedure (bone marrow transplantation) will be done soon after the reports are in.

Thank you for your support. Please do pray for his health and speedy recovery. Will keep you posted. 
31st December 2017
hi Donors, we already informed you that mother of Akash who is also the bone marrow donor of Akash has undergone surgery for gall stones and now she has recovered.  

Parents of Akash are now ready to take the child to CMC-Vellore in first week of January. Let;s hope that this new year brings many more years of healthy and happy life for the child. Wish you all a happy new year!
hi Donors, we already informed you that mother of Akash who is also the bone marrow donor of Akash has undergone surgery for gall stones and now she has recovered.  

Parents of Akash are now ready to take the child to CMC-Vellore in first week of January. Let;s hope that this new year brings many more years of healthy and happy life for the child. Wish you all a happy new year!
Rs.1,308,470
raised of Rs.2,500,000 goal

693 Supporters

Beneficiary: Birender Kumar ... info_outline

Supporters (693)

Rajesh
Rajesh donated Rs.2,500
3 months ago

God Bless!

KS
Kumari donated Rs.1,000
6 months ago
SJ
Siddharth donated Rs.500
6 months ago

Hope you get well soon

Rajesh
Rajesh donated Rs.2,500
7 months ago

God Bless

SR
Santosh donated US $25
9 months ago
A
Anonymous donated US $25
9 months ago

Best Wishes for a Speedy Recovery, God Bless You.