My name is Afshan and I live 200 kms outside of Hyderabad city, Andhra Pradesh. I am 35 years old. I live with my mother and younger sister, we are a family of three, who live in a modest 1 BHK flat on the outskirts.
This is my story:
I work as a Data Entry Manager in a small data entry firm, 15 kms away from home and have been the sole earning member of the family for the last few years.
My mother worked as a househelp for several years and managed to bring in the bare minimum to keep food on our plates. She was diagnosed with diabetes, but that didn't stop her. My mother supported us with the bare minimum and somehow managed to provide basic food and education. I lost my father at the age of 10. After my 10th standard, at the age of 15, I managed to work small jobs till I landed the role of a Data Entry Associate in the firm where I have been working for the last 5 years.
In all this time, I have been suffering from End Stage Renal Disease for the last 15 years.
This is the story of my disease:
I was first diagnosed when I was 7 years old. I started undergoing treatment almost immediately, and that has been continuing for more than 20 years now. Medicines are a huge part of my routine, and cannot be missed at any point. My treatment mainly involved medication for the first 5 years.
However, 15 years ago, my condition started getting worse.
I was advised to undergo dialysis treatment. This required me to do dialysis thrice a week. For the dialysis, I am required to travel to the clinic which is again a few kms away from the office.
I don't own a vehicle. I take the local bus. I start from home at 8:30 in the morning and take a bus to the office.