It's been a tough time for me and my family. My 3 months older little daughter Debika is suffering from a rare genetic disease - LYMPHOPROLIFERATIVE SYNDROME DUE TO XIAP GENE MUTAION.
She was firstly seen to doctor with symptoms of fever, loose stools, decreased oral intake, decreased urine output. After diagnosis and DNA test report the doctor has confirmed us about the rare disease.
She is under intensive treatment by Apollo Hospitals, Chennai. And doctors have suggested Stem Cell Therapy through Bone Marrow Transplant as the only treatment possible to fight this deadly disease. And huge cost of Stem Cell therapy is well-known to everyone. It's very difficult for a mediocre person like me to arrange the huge money alone. Hence I seek your kind support for the cause so that we can provide the best possible treatment to my daughter. Please keep my little daughter in your prayers. She needs that the most. I consider myself very much unfortunate to say that I had a baby boy who also died from Ulcerative Colitis. We had done his treatment in Apollo and I am completely exhausted with all my savings for his treatment. Still we couldn't save him. This time we are trying our best to fight for my daughter.Kindly contribute to the cause to the best of your ability and spread the cause among your near and dear ones so that we can fight this difficult time with great vigor. Donations of any size are welcome and accepted with immense gratitude.
Thanking you all for your unconditional support and prayers.
Father of Patient (Debika Mandal)