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Our Son Will Take His Last Breath If He Does Not Get A Heart Surgery

Akash’s favourite place in the world is his mother’s lap, and for good reason. When he is breathless and almost fainting from exertion due to a congenital heart defect, it is only there he finds solace. His mother, Shanthi, makes sure that she holds her son close every time he comes to her for comfort.

“The doctors tell me that he does not get oxygen, because his heart is very weak. Ever since the doctor said that, I have been very scared. Akash is my only child and I cannot even think about losing him,” says Shanthi.

Akash cannot eat a morsel properly

In addition to shortness of breath, Akash’s development and growth have also suffered because of his condition. Where a normal 4 year-old child should weigh at least 15 kg, Akash is only 11 kg. His mother has tried feeding him nutritious food, but to no avail; the child is becoming frailer by the day. “He eats only two mouthfuls of anything that I give him. He gets cranky when I try to give him more,” she shares.

Akash cries at a stretch, which makes him more ill

Akash loves to walk, but gets tired and famished almost as soon as he takes a few steps. He then resorts to crying, which worsens his breathlessness. “My child wants to do a lot of things – he wants to run and play like a normal child, but cannot – and this makes him angry. I cannot pacify him during such moments. I am helpless,” adds Shanthi.

Though he cannot go to school or any other place as such because of his weak heart, there is a place that he has been frequenting since his birth – the hospital, and he is absolutely terrified of the place. It makes always makes him cry - and he clings to his mother even more.

“Just last month, he had an angiogram. My child suffered a lot. I wished at that point if I could take all his pain away. He cried for two hours continuously that day. I was so scared that I thought he would stop breathing suddenly. I held him close all day,” she recalls.

This father cannot visit his ailing son more often

While Akash and his mother live in a remote village near Kodupatti in Tamil Nadu, his father, Rayar, is a daily wages labourer, trying to eke out a livelihood in Kerala. “Akash’s father comes home only when we have to take him for treatment to Apollo Children’s Hospital in Chennai. He cannot visit regularly as we have taken many loans for our child’s treatment and he cannot afford to take a day off,” laments Shanthi.

“He cries to me on the phone every day saying he wants to see our child. But what can we do? We have no money and we have to go through this pain so our child does not suffer.”

How you can help

Akash’s condition is so severe and rare that only a major heart surgery can save him. Presently, he is taking a few high dose medications that is making him more weak. He cannot walk properly, and so watches TV all day. “He loves listening to songs. They distract him from his pain,” says his mother Shanthi. 

His parents are doing whatever it takes to save him, but they cannot arrange for the funds required for his surgery. Whether Akash will brave his condition and grow up happy is in your hands.
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8th May 2018
Dear Supporters,

Here is an update for you.

As you know Akash presented to us very sick, with oxygen saturation of only 40-50% (normal is 100%)

He had undergone first stage surgery with us as a 3 month old. He had developed pulmonary arteriovenous malformations and that was turning him blue.

We decided to take him for a complex surgery called completion Fontan. Due to his poor pre-operative condition,  there was every possibility the child could crash after surgery.

We skillfully executed the Fontan procedure. The child was very sick after the procedure with very low oxygenation.  There were times we thought we had lost him.

Due to the determined efforts of our team consisting of surgeons, cardiologists, anaesthetists, intensivists, paramedical staff and nurses and utilising high tech gadgetry like nitric oxide, we were able to pull little Akash through after several brushes with death and playing a game of cat and mouse with getting him off the ventilator.

It was a proud and satisfying moment for the teams at Apollo Children's Hospital,  Chennai and MILAAP when Akash was able to go home.

Thank you so much for the love and support.

Dr Neville Soloman
24th March 2018
Dear Supporters,

Thank you for the wonderful love and support that you have shown towards Akash. He is doing better now and his health has stabilized compared to earlier. Based on the reports from the tests conducted we will be admitting him to the hospital and he will be undergoing the surgery on Monday (26th March).

Thank you all for all the love and support once again. Please do pray for his health and speedy recovery. Will keep you posted further about his health. 

Content Disclaimer: The facts and opinions, expressed in this fundraiser page are those of the campaign organiser or users, and not Milaap.
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Beneficiary: Akash info_outline