They put a price on the life of a child. 7 months old and suffering from a disease I couldn't first comprehend, my son is fighting for his life. I wish the world was different. I wish they would save his life because every child’s life is precious.
Most children who have this disease and go untreated die by the age of 2. If we want to save our son then we need to get stem cells from another person’s bone marrow transplanted into his body.
1 in 200,000 people get this disease and my son is one of them.
Thankfully, our neighbors and people in this community raised funds for us. They are the only ones who have held our hand through everything. But there's only so much they can do.
Without treatment, Vygith can develop hearing loss, fractures, vision issues, short stature and recurrent infections. I have to take extra care of him so he does not contract any infection. If he does, with his current low count of Haemoglobin and white blood cells, his body cannot recover and he will lose his life.