"My 9-year-old daughter, Sumaiya has cancer. I was scared when I heard the doctor say ‘Your daughter will not survive beyond 3 months without treatment.’ When we started her treatment, I didn't imagine a child her age to be so brave. She was the one who gave me the strength to not give up despite struggling everyday to support her treatment. But despite fighting bravely for 2 years, the cancerous tumor continues to threaten her life," - Samina, Sumaiya's mother.
Sumaiya developed a swelling on her shoulder which turned out to be a tumourSumaiya lived in a small district of Bankra, West Bengal with her parents. The little girl has always aspired to be a teacher. Whenever Samina left her alone for a while, she would start scribbling on the walls, pretending to be a teacher. Two years ago, she developed a bad swelling on her right shoulder. She couldn't even lift her hand and was struggling to even eat.
"She kept telling me that her shoulder was hurting. I didn’t pay much attention until one day I saw a huge swelling on her right shoulder joint. It was so huge that it could easily have been mistaken as a separate organ attached to her shoulder."- Samina
Samina and Sarif took her to several doctors. While some doctors said the swelling could due to some injury, others suspected a tumor. After several tests, doctors finally confirmed that Sumaiya has developed a bone tumour called metastatic PNET (primitive neuroectodermal tumor) and it can kill her if left untreated.
‘Ma, if I can’t hold a chalk or a marker, how will I become a teacher?’, asks poor SumaiyaAfter 2 years of intensive chemotherapy, just when her parents thought that their daughter is cured, the tumour came back worse than before. Her shoulder begun swelling again. Even if she would mistakenly turn towards her right side while sleeping, she would shriek in pain. Samina doesn't know how many sleepless nights she has spent so far to comfort her daughter.
“My daughter still hasn’t got used to using her left hand. She often tells me, ‘Ma, if I can’t hold a chalk or a marker, how will I ever become a teacher?’ I don’t know how to answer her innocent question. She keeps asking me to read to her so that when she goes back to school, she is not behind others. I can’t tell her that I am not sure if she can ever go back to school.”- Samina
The family who had to borrow to feed their kids can’t afford lakhs needed for her treatmentSumaiya’s father, Sarif does odd jobs in his locality for daily wage. For the past few years, he has been suffering from health issues including a severe eye problem due to which he can’t work much. He earns a maximum of Rs 1000 a month. Sarif and Samina were already begging and borrowing to feed their children.
“We have already spent over Rs 10 lakhs to keep our daughter alive. Arranging another Rs 4 lakhs for her chemotherapy is impossible for us. I stay alive hoping that one day my children will overcome all poverty and do something great. Now I am on the verge of losing my daughter.Time is running out and without help, I will be forced to stop her treatment. -Sarif
How you can help9-year-old Sumaiya is suffering from a deadly bone tumor that will kill her without prolonged chemotherapy. To keep her alive, her parents have spent everything in the past 4 years. Her father is in so much debt that it is impossible for him to afford her treatment now.
Your support will help Sumaiya live
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.