"He wouldn't walk without holding on to something. When we asked him, he told us that he couldn’t see because the lights in the house were switched off. We were so shocked." -Nagesh, Sathvik's father.
3-year-old Sathvik’s vision is rapidly diminishing. He can’t walk around on his own anymore, and on some days he can only see blurred objects. As the days go by, Nagesh and Sujatha’s worry for their son’s life is only increasing. Without an urgent bone marrow transplant, their only child will go completely blind and never overcome this debilitating bone disease that will slowly take over his entire body and life.
Sathvik can't walk without support and thinks that he can’t see because the lights are off
“6 months ago, our normal, happy child suddenly started walking around the house by feeling things around him. We didn’t know what to do but take him to the hospital immediately. For months, even the doctor couldn’t tell us what was wrong with him." - Nagesh.
Sathvik has osteopetrosis, a rare disorder that causes the bones to harden and become dense. This not only causes low blood cell production leading to severe anaemia but also causes the bones to easily fracture. The disorder affects the functioning of the cranial nerve which causes blindness, deafness and facial nerve paralysis. The perils are endless for little Sathvik.
He will go completely blind without treatment
“We realised that his growth was slow. We were a little worried, but when the doctors told us that everything was fine, we didn’t dwell on it. For 3 years he has lived with this disorder without us knowing, but now its only getting worse. Now even a small fracture might be fatal. He’s such a smart and loving child. We were waiting for him to go to school, but without treatment, he will never be able to see again. ”
Nagesh is heartbroken that he can’t save his son, no matter how hard he tries
“We’re from a small village in Telangana. We never knew our son had such a serious disorder. He seemed fine, besides his slow growth. Now, I can’t help but blame myself for letting it get so serious. If only we had found out earlier, maybe he wouldn’t risk losing his eyes. He has his whole life ahead of him, and I hope and pray that there’s more than just darkness in store for him.”
Nagesh is a daily wage worker. With irregular work and income, he could do nothing but beg and borrow for his son’s treatment so far. He has borrowed nearly 8 lakhs and can’t afford the 15 lakhs needed for the life-saving bone marrow transplant. Racked with sadness and guilt, Nagesh and Sujatha are desperate to save their only child.
How You Can HelpSathvik needs an urgent bone marrow transplant to save his eyesight. He has a serious, debilitating bone disease. For months, Nagesh and Sujatha shuttled between hospitals trying to find a solution for their son’s condition. Although they’ve finally got some hope, the only thing that can save their son is much beyond their reach. The treatment will save little Sathvik from spending the rest of his life in darkness.
Your support will save Sathvik’s eyes and life.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
Click here to save Sathvik.