“We had never even heard the name of this disease. It shocked us all. Our little boy’s condition is worsening day by day and we can’t do anything but watch helplessly as he suffers”8-year-old Mubeen was a seemingly healthy child. A couple of weeks ago, he got a fever that lasted for a few days. He started complaining about pain in his limbs and also started having difficulty in moving. When he was taken to the hospital, the doctors ran tests and diagnosed him with Guillain-Barre syndrome, an autoimmune disorder in which the immune system attacks the neurological and muscle systems, impairing movements. Now Mubeen is in the hospital undergoing intensive treatment in order to recover from this rare condition.
This 8-year-old's life changed for the worse with the disorderOne day when Mubeen was still down with fever, his father Mohamed Musa noticed that he was having trouble wearing his trousers since he couldn’t move his hands and legs anymore. He immediately took him to a hospital nearby where the doctors said Mubeen’s situation looked critical and he would need a hospital with better facilities to diagnose his condition. After visiting a couple of more doctors, Mubeen’s father took him to KIMS where he was finally admitted and put on ventilator support immediately.
He loves to dance with his friends and now he can't even move
“He’s just scared that he can’t dance in the school’s functions again. All he wants to do is to go running back to the stage and dance to his favorite songs in front of an audience. What a cruel thing to happen to him.”
Mubeen is an especially bright child, who enjoys school. He is also a big fan of dancing and always takes part in the school’s annual functions. His biggest worry is that he can’t dance anymore. He keeps telling his parents to not tell his friends about his condition, lest they worry about him. Being unable to move his hands and legs is the biggest punishment fate could put him through.
Mubeen's father doesn't have money to end Mubeen's misery
“They’re feeding him through tubes, he looks at us so helplessly. He’s tolerating a lot of pain and discomfort patiently. He’s a brave boy, I just want him to recover soon.”It is a rare autoimmune syndrome Mubeen suffers from. He needs intensive medical attention, medication, physiotherapy and immunoglobulin treatment in order to recover from his condition. The movements of his muscles have been so impaired that he can’t even breathe without support. He can’t eat and he’s being fed through nasal tubes. For a little boy of 8, he’s in a lot of pain and his parents tear up every time they see him in this helpless state. They’re willing to do all it takes to get him the treatment he needs, but financial constraints are a big bottleneck for them.
Musa works as a small wedding florist in Hyderabad. Due to the seasonal nature of his profession, there’s no stable income in their household. But he tries and makes sure that his family has food to eat and that his three children go to school. So far they have spent over Rs 1.5 lakhs towards Mubeen’s treatment. They have run out of whatever little savings they had, and have borrowed money from relatives too. Now there’s no one left who can lend them money for Mubeen’s treatment.
How you can helpIn order to get Mubeen back up on his two feet again, Musa and Shabana need your help. Only your contribution can save this bright and cheerful kid from a terrifying fate and give him a second chance to live his life to the fullest.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.
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