“Maa, I can’t move my hands and legs - I can’t even feel them’Soumyadip was having loose motions on that fateful day - Malati and Biswajit thought it’s because of that ‘chaat’ (spicy street food) that he had eaten from outside his school. They gave him medicines but when he didn’t get better, they took him to a doctor.
“Doctors said that it’s just the weakness from the loose motions and he should be fine by the night. But by midnight, Soumyadip told us that he can’t move his arms and legs, he can’t even feel them,” - Malati, mother.
The boy’s parents regret that they missed the first signs of the disease
“We didn't realise that his weakness was the first sign of the disease. In Kolkata, they immediately did an MRI scan only to tell us that my son has a disease where his immune system has attacked his nerves. It is because of this disease that his entire body has been paralysed. We have never been more scared,” - Malati.
Soumyadip has Gullain-Barnes Syndrome - the weakness that the boy complained of was not because of the loose motions but because of the rare but serious autoimmune disorder. His parents are now regretting the fact that they didn’t pay much attention to the first signs of the disease.
He's been on ventilator support for more than a month nowIt's been 45 days since Soumyadip has been in the ICU. He opens his eyes and looks at his parents, bats his eyelids but can’t move an inch of his body. He can’t even breathe on his own. Malati and Biswajit think about how energetic he used to be. Looking at their son’s paralyzed body, they can’t hold back their tears.
“I am salesman at a jewelry shop in Bandel, West Bengal and make about Rs 6000 a month. With my salary, I don’t know how I will afford my son’s medicines and injections - together they cost almost Rs 3 lakhs. Along with this, he needs to stay in the ventilator support also - I would need Rs 4 lakhs for that. Without help, I will never be able to arrange for it,” - Biswajit (father).
Waiting outside the ICU door, Malati and Biswajit are spending each moment fearing they might lose their 7-year-old. A generous contribution from your side can go a long way to help these parents save their son.
The specifics of this case have been verified by the medical team at the concerned hospital. For any clarification on the treatment or associated costs, contact the campaign organizer or the medical team.